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Person-First or Identity-First? What Parents Should Know About Language in the Disability Community
Global Insights > Culture

Person-First or Identity-First? What Parents Should Know About Language in the Disability Community

By Dylan Hayes
..."the disabled," "the retarded," "the blind." Reducing someone to their diagnosis was the norm in medical, educational, and policy settings. Person-first...retarded," "the blind." Reducing someone to their diagnosis was the norm in medical, educational, and policy settings. Person-first phrasing was a correction....
Writing a Scholarship Essay About Your Disability: What Works (and What Doesn't)
Financial > Scholarships

Writing a Scholarship Essay About Your Disability: What Works (and What Doesn't)

By Sophie Turner
...out. Lead with Impact, Not Diagnosis. The opening line "I was diagnosed...Diagnosis. The opening line "I was diagnosed with cerebral palsy at age...about you. It's a fact from a medical chart. Compare that to: "I...learned, or what you built. The diagnosis can come later, if it needs...committee isn't evaluating your medical history. They're evaluating...
The 13 Disability Categories Under IDEA: Who Qualifies for Special Education
Education > Special Education

The 13 Disability Categories Under IDEA: Who Qualifies for Special Education

By Isabella Johnson
Your child has a diagnosis. The pediatrician used clear...The pediatrician used clear medical language, the evaluations...often than parents expect. A medical diagnosis and special education...parents expect. A medical diagnosis and special education eligibility...instruction). A child with the same diagnosis whose reading comprehension...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
...graduation. It's the process of teaching your child to manage their own complex medical needs, navigate insurance, advocate in appointments, and recognize when...transfer. At 14, your teen can start learning the vocabulary of their own diagnosis. What level of spina bifida they have. What their shunt does and why it...
Supporting Siblings When a Child Has Cancer: A Family Guide
Special Needs > Cancer

Supporting Siblings When a Child Has Cancer: A Family Guide

By Aiden Moore
When a child is diagnosed with cancer, siblings don't experience a less...Information gets filtered. Parents explain the diagnosis to the child with cancer in age-appropriate detail....but because the child in treatment has immediate medical needs that consume available attention. A sibling...
IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before
Special Needs > Rare Disorders

IEP Advocacy for Children with Rare Disorders: When No One Has Done This Before

By Isabella Lewis
...education, regardless of whether the diagnosis has a name, whether staff have prior...based on educational impact, not diagnosis recognition. Why "We've Never Seen...ability to access education. They don't diagnose medical conditions. They assess educational...access education. They don't diagnose medical conditions. They assess educational...
Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three
Special Needs > Down Syndrome

Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three

By Mr. Jackson Pierce
Your baby has Down syndrome. The diagnosis came with medical terminology, testing timelines,...baby has Down syndrome. The diagnosis came with medical terminology, testing timelines, and a stack of...three at no cost to your family. A Down syndrome diagnosis alone is enough to qualify in most states, with...
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
Special Needs > Diabetes

Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide

By Grace Lewis
...question you've been asking since diagnosis: how do I teach hypoglycemia awareness...not match your child's profile. The medical system treats the two diagnoses separately,...The medical system treats the two diagnoses separately, but you're managing...with another disability. Why Dual Diagnosis Diabetes Management Is Different....
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
Social Engagement > Support Groups

Finding Your People: A Complete Guide to Support Groups for Special Needs Families

By Daniel Evans
...autism, Down syndrome, cerebral palsy. Others are diagnosis-agnostic and focus on shared parenting challenges....Parent USA explicitly matches families by specific diagnosis, which matters when you're dealing with rare conditions...conditions and need someone who understands the medical nuances, not just the emotional context. Caregiver...
How to Find Social Groups and Community Programs for People with Disabilities
Social Engagement > Community Living

How to Find Social Groups and Community Programs for People with Disabilities

By Dr. Opal Stenson
...up as yourself. Not a support group where the only shared experience is diagnosis. Not a therapy session disguised as recreation. A place where you can talk...it. Finding that group is harder than it should be. Search results return medical support groups, parent organizations, or programs designed for children....
Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide
Research > Genetics

Understanding Genetic Testing for Autism, Cerebral Palsy, and Developmental Disabilities: A Parent's Guide

By Aiden Moore
Your child has a diagnosis. Autism, cerebral palsy,...after a developmental diagnosis isn't about confirming...Testing Matters After a Diagnosis. A diagnosis like autism...After a diagnosis. A diagnosis like autism or cerebral...existed. A specific genetic diagnosis may qualify your child...therapies. It can guide medical monitoring for related...
How to Find and Evaluate Clinical Trials for Your Child's Disability
Research > Clinical Trials

How to Find and Evaluate Clinical Trials for Your Child's Disability

By Sophia Wilson
...the Advanced Search filters: Condition or disease: Enter the specific diagnosis: autism spectrum disorder, cerebral palsy, Down syndrome. The database...autism spectrum disorder, cerebral palsy, Down syndrome. The database uses medical terminology, so if your initial search returns nothing, try the clinical...

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