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CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
In February 2025, a medical team at UCSF delivered the first personalized CRISPR...at UCSF delivered the first personalized CRISPR therapy to an infant with CPS1 deficiency, a rare metabolic...disorders won't qualify for personalized CRISPR therapy in the next few years. But the infrastructure being...
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
Global Insights > Healthcare

Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed

By Ivy Sullivan
...it doesn't come close to covering your child's therapy appointments, specialist visits, or durable medical...therapy appointments, specialist visits, or durable medical equipment. The deductible resets every January,...Beckett waivers, and those that do set their own medical and functional eligibility...
Person-First or Identity-First? What Parents Should Know About Language in the Disability Community
Global Insights > Culture

Person-First or Identity-First? What Parents Should Know About Language in the Disability Community

By Dylan Hayes
...retarded," "the blind." Reducing someone to their diagnosis was the norm in medical, educational, and policy settings. Person-first phrasing was a correction....those dimensions. Most early intervention programs, school systems, and therapy clinics still teach person-first language as the default. It's baked into...
What to Expect at Your Child's First Speech Therapy Appointment
Therapies > Speech

What to Expect at Your Child's First Speech Therapy Appointment

By Caroline Harris
...been told your child needs a speech therapy evaluation, and now you're wondering...Most parents walk into a first speech therapy appointment with no framework for...documents saves time and gives the therapist context before they meet your child....before they meet your child. Bring: Medical history: Any records related to hearing...
Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three
Special Needs > Down Syndrome

Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three

By Mr. Jackson Pierce
...diagnosis came with medical terminology,...intervention services: therapies that can...what those therapies are, when...federally mandated therapy for infants...three primary therapies are physical...are physical therapy (PT), speech-language...speech-language therapy, and occupational...occupational therapy (OT). Each addresses...walking. Speech therapy addresses feeding,...solids. The therapies work together,...
How to Find Social Groups and Community Programs for People with Disabilities
Social Engagement > Community Living

How to Find Social Groups and Community Programs for People with Disabilities

By Dr. Opal Stenson
...Not a support group where the only shared experience is diagnosis. Not a therapy session disguised as recreation. A place where you can talk about movies,...it. Finding that group is harder than it should be. Search results return medical support groups, parent organizations, or programs designed for children....
Contractures in Children with Cerebral Palsy: Recognition, Prevention, and When to Escalate Care
Medical > Orthopedics

Contractures in Children with Cerebral Palsy: Recognition, Prevention, and When to Escalate Care

By Dr. Jack Davis
...for non-surgical intervention doesn't stay open indefinitely. This is the escalation ladder most families will navigate: home stretching, physical therapy, serial casting, botulinum toxin injections, and in some cases, surgical release. Each step has clinical thresholds that signal when it's time to move...
How to Appeal an Insurance Denial for Speech, OT, or ABA Therapy
Legal > Healthcare

How to Appeal an Insurance Denial for Speech, OT, or ABA Therapy

By Amelia Scott
...mail. Your child's speech therapy, occupational therapy, or ABA...speech therapy, occupational therapy, or ABA services won't be covered....referral, and your child's therapist documented progress in every...denial The clinical criteria or medical policy the insurer used to...the clinical guidelines or medical policy referenced in the denial...
The Complete Guide to Finding Support as a Special Needs Parent
Parenting > Support Groups

The Complete Guide to Finding Support as a Special Needs Parent

By Emily Thompson
...the next family. The occupational therapist sees your child twice a week. The...It's a valid search for something the medical system doesn't provide: peer experience....in someone else's story. That's not therapy. It's how humans process hard things....challenges. That parent doesn't give you medical advice. They tell you what worked,...
Medication or Therapy? How to Decide What Your Special Needs Child Needs First
Medical > Psychiatry

Medication or Therapy? How to Decide What Your Special Needs Child Needs First

By Chloe Davis
...working. What Psychiatrists Do. Psychiatrists are medical doctors who specialize in mental health. They can...medication checks. These appointments are shorter than therapy sessions, usually 15-30 minutes, focused on symptom...doctoral-level training in mental health but aren't medical doctors. They can't prescribe medication in most...
How to Be Your Child's Best Advocate: A Complete Guide to Special Needs Advocacy
News > Advocacy

How to Be Your Child's Best Advocate: A Complete Guide to Special Needs Advocacy

By Amelia Harper
...suddenly navigating IEPs, therapies, medical appointments, and...navigating IEPs, therapies, medical appointments, and insurance...effective advocacy at school, in medical settings, and throughout your...evaluations, IEP documents, therapy notes, medical records, and...documents, therapy notes, medical records, and correspondence...
The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)
Medical > Psychiatry

The Hidden Mental Health Crisis: Why Teenagers with Disabilities Need Psychiatric Care (And How to Access It)

By Chloe Davis
...mostly works. But this year, she stopped trying. She doesn't want to go to therapy appointments. She cries when you mention school. Her pediatrician says it's...changes. Then add disability-specific layers: chronic pain, social isolation, medical trauma from repeated procedures, awareness of difference, restricted independence,...

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