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Special Needs > Epilepsy
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
...she doesn't know is whether this is the seizure type that requires the medication in the nurse's office, or whether this passes on its own. She doesn't know...Non-parent caregivers are often expected to respond to seizures with no medical history, no training, and no clear threshold for when to act. If you're a teacher,...
Parenting > The Early Years
Children’s Medical Records: 5 Things to Watch
Parents should access children's medical records for BMI, trends, medication history, health patterns, and developmental milestones.
Health > Treatment
Transitioning to Adult Healthcare: Preparing Your Young Adult with Special Needs for the Move
...their communication style, what medications worked and which ones didn't. Now...Do they know the names of their medications and what they treat? Can they describe...provider who doesn't know their history? Adult medicine assumes patients...the next appointment, keeping a medication list...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...doctors knew what developmental milestones looked like in context, what medication side effects mattered for this population, and how to adjust care plans...didn't include cerebral palsy or fragile X syndrome because those patients historically stayed in...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...bifida clinic has been your anchor for years. The team knows your child's history, manages their shunt, coordinates bladder and bowel care, tracks orthopedic...they have. What their shunt does and why it matters. The names of their medications and what each one treats. This isn't about them taking over their care...
Special Needs > Respiratory Health
Asthma Management at School: What Parents of Children with Disabilities Need to Know
...recognize early warning signs. Standard action plans assume the child will notify an adult when symptoms start. They assume the child can self-administer medication with minimal supervision by middle school. They assume typical respiratory effort and that peak flow measurements are possible. When any of those...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...hospitalizations, declining lung function, and medication non-adherence during these years. The problems...It's about whether your teen can manage their medication schedule independently, recognize early signs...family-centered. Parents sit in on appointments, manage medication schedules, and coordinate with the clinic. Adult...
News > Research
When Studies Disagree: How to Make Sense of Conflicting Research as a Special Needs Parent
...research exists across nearly every intervention parents consider: gluten-free diets for autism, screen time limits for ADHD, optimal therapy intensity, medication timing, classroom inclusion models. The disagreement isn't a sign that science is broken. It's a sign that science is working exactly as designed:...
Parenting > Adulthood
Housing Options for Adults with Disabilities: From Supported Living to Independence
...live safely and work toward what they want? Group homes house 4–8 residents with 24-hour staff coverage. Staff are there around the clock, handling medication management, meal preparation, personal care, and daily structure. The provider owns or leases the home, so residents don't hold the lease and have...
Health > Treatment
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
Medication administration is...that over 30% of medication errors in pediatric...won't take their medication, you're managing...the most common medication challenges: pill...and sensory-driven medication resistance. These...of taking actual medication. M&Ms and Skittles...motor practice from medication stakes. Your child...
Special Needs > Epilepsy
School Seizure Action Plans: What Every Parent and Teacher Needs to Know
...exactly what to do when your child has a seizure. It describes what the seizure looks like, what's normal for your child, when to administer rescue medication, and when to call 911. It's individual, not generic. The first seizure at school is often the most chaotic because no one knows what to expect. An...
Special Needs > Epilepsy
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
...child's neurologist just told you the seizures are medication resistant. You've tried three anticonvulsants....children with epilepsy don't respond adequately to medications. For many of these families, dietary therapy...documented: many children who don't respond to medications experience significant seizure reduction on a...