Results
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...learning the vocabulary of their own diagnosis. What level of spina bifida they have. What their shunt does and why it matters. The names of their medications and what each one treats. This isn't about them taking over their care immediately. It's about moving from "my parents handle everything" to "I understand...
Special Needs > Epilepsy
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
...child's neurologist just told you the seizures are medication resistant. You've tried three anticonvulsants....children with epilepsy don't respond adequately to medications. For many of these families, dietary therapy...documented: many children who don't respond to medications experience significant seizure reduction on a...
Special Needs > Attention Deficit Disorders
ADHD Medication: Separating Facts from Fear for Parents
...recommended ADHD medication and you've been...sense. Stimulant medications like Ritalin...ADHD stimulant medication in children....Children on ADHD medication showed reduced...risk isn't the medication. Kids with untreated...Treating ADHD with medication appears to reduce...Children on ADHD medication had lower rates...with ADHD. The medication reduced risk...not what the medication is supposed...
Parenting > General
The System Navigator's Toolkit: Coordinating Multiple Specialists and Services
...of truth that every specialist can pull from. Build a master document with: Diagnosis summary (one paragraph, current as of this month) Active medications (name, dose, prescriber, start date) Current providers (name, specialty, contact, last visit) Allergies and adverse reactions Emergency contacts...
News > Research
How to Read Research About Special Needs: A Guide for Parents Who Aren't Scientists
...should. You're not a scientist. You don't have time to read 40-page journal articles. But you're making decisions about your child's therapies, medications, and interventions based on research you encounter secondhand. This article teaches you how to evaluate those claims without a PhD. Why This Matters...
Medical > Psychiatry
Medication or Therapy? How to Decide What Your Special Needs Child Needs First
...prescribes medication. The other...child needs medication right now....prescribe medication, and monitor...monitor how medications affect your...might require medication management,...assess whether medication is appropriate,...sure the medication is helping...weeks for medication checks. These...tracking and medication adjustments....prescribe medication in most states....
Medical > Pediatrics
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
...pediatrician. Each specialist orders tests, adjusts medications, and sends notes to the pediatrician's office....with a question about whether the new seizure medication might be causing the digestive issues, nobody...every specialist, identifies conflicts between medications, and answers questions that fall between specialties....
Medical > Cardiology
Managing Your Child's Heart Health with Muscular Dystrophy: A Parent's Guide to Cardiomyopathy Monitoring
...damages cells. In the heart, that damage is cumulative and irreversible. The monitoring protocol exists because early detection buys time. Heart medications started before imaging shows damage can preserve function for years. This isn't about catching a disease that might develop. It's about tracking...
Health > Treatment
Managing Multiple Medications for Children with Medical Complexity: A Parent's Safety Guide
...child takes five or more medications, you are not just a parent....than children on single medications. Over 30% of medication errors...medications. Over 30% of medication errors happen at home, not...works. Start With a Master Medication List. You need one document...living record. Include: Medication name, both brand and generic...
Assistive Tech > Mobility
Tariffs Are Raising the Cost of Wheelchairs, AAC Devices, and Medications — What Families Can Do
...equipment, AAC devices, and specialty medications. Most durable medical equipment...hardware comes from abroad. Specialty medications for rare diseases often depend on...Pharmaceutical products: Specialty medications for rare genetic conditions, seizure...tariffs up to 200% could make some medications financially inaccessible. Replacement...
Special Needs > Respiratory Health
Navigating Respiratory Health for Children with Special Needs
...include information on medications, treatments, and...Daily controller medications to prevent symptoms...Quick-relief or rescue medications for sudden symptoms...settings. Managing Medications and Treatments....Treatments. Consistent medication management is vital...properly administer medications. Use tools like...medications. Use tools like medication trackers or apps...
Special Needs > Hearing Impairments
Understanding Hearing Impairments and Beyond
...ear or auditory nerve), and mixed (a combination of both). The causes can include aging, exposure to loud noise, infections, genetics, and certain medications. Symptoms of hearing loss may include difficulty understanding speech, frequently asking others to repeat themselves, turning up the volume on the...