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Building Decision-Making Skills for Young Adults with Disabilities
Lifestyle > Independence

Building Decision-Making Skills for Young Adults with Disabilities

By Nora Bloom
...child turns 18 in two years. You've spent the last sixteen building every skill they need: dressing, cooking, navigating public transit, managing medications. But when you think about the decisions they'll legally control at 18 (healthcare, finances, housing, contracts), the gap feels enormous. Guardianship...
Medication Management Independence for Teens with Chronic Conditions
Lifestyle > Independence

Medication Management Independence for Teens with Chronic Conditions

By Nora Bloom
Your 15-year-old has been on the same medication routine for three years. You've managed it. You've...you stepped back. Why the Handoff Feels Risky. Medication management isn't filing papers or doing laundry....are physiological. A missed dose of a seizure medication, an insulin error, a skipped immunosuppressant:...
Handling Illegal Interview Questions About Disability
Career > Interviewing

Handling Illegal Interview Questions About Disability

By Liam Richardson
...offer. This applies to application forms, phone screens, and in-person interviews. Illegal questions include: Do you have a disability? What medications do you take? Have you ever filed a workers' compensation claim? How many sick days did you use at your last job? Can you perform [specific task]...
Pre-Employment Disability Discrimination: Illegal Questions and Hiring Bias
Career > Discrimination

Pre-Employment Disability Discrimination: Illegal Questions and Hiring Bias

By Oliver Smith
...the job. They can ask about your skills, experience, and ability to complete specific tasks. They cannot ask whether you have a disability, what medications you take, or whether you've ever filed a workers' compensation claim. The protection isn't about hiding information. It's about ensuring the hiring...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
...learning the vocabulary of their own diagnosis. What level of spina bifida they have. What their shunt does and why it matters. The names of their medications and what each one treats. This isn't about them taking over their care immediately. It's about moving from "my parents handle everything" to "I understand...
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
Special Needs > Epilepsy

Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets

By Emily Thompson
...child's neurologist just told you the seizures are medication resistant. You've tried three anticonvulsants....children with epilepsy don't respond adequately to medications. For many of these families, dietary therapy...documented: many children who don't respond to medications experience significant seizure reduction on a...
ADHD Medication: Separating Facts from Fear for Parents
Special Needs > Attention Deficit Disorders

ADHD Medication: Separating Facts from Fear for Parents

By Liam Fitzgerald
...recommended ADHD medication and you've been...sense. Stimulant medications like Ritalin...ADHD stimulant medication in children....Children on ADHD medication showed reduced...risk isn't the medication. Kids with untreated...Treating ADHD with medication appears to reduce...Children on ADHD medication had lower rates...with ADHD. The medication reduced risk...not what the medication is supposed...
The System Navigator's Toolkit: Coordinating Multiple Specialists and Services
Parenting > General

The System Navigator's Toolkit: Coordinating Multiple Specialists and Services

By Noah Bennett
...of truth that every specialist can pull from. Build a master document with: Diagnosis summary (one paragraph, current as of this month) Active medications (name, dose, prescriber, start date) Current providers (name, specialty, contact, last visit) Allergies and adverse reactions Emergency contacts...
How to Read Research About Special Needs: A Guide for Parents Who Aren't Scientists
News > Research

How to Read Research About Special Needs: A Guide for Parents Who Aren't Scientists

By Grace Lee
...should. You're not a scientist. You don't have time to read 40-page journal articles. But you're making decisions about your child's therapies, medications, and interventions based on research you encounter secondhand. This article teaches you how to evaluate those claims without a PhD. Why This Matters...
Medication or Therapy? How to Decide What Your Special Needs Child Needs First
Medical > Psychiatry

Medication or Therapy? How to Decide What Your Special Needs Child Needs First

By Chloe Davis
...prescribes medication. The other...child needs medication right now....prescribe medication, and monitor...monitor how medications affect your...might require medication management,...assess whether medication is appropriate,...sure the medication is helping...weeks for medication checks. These...tracking and medication adjustments....prescribe medication in most states....
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...pediatrician. Each specialist orders tests, adjusts medications, and sends notes to the pediatrician's office....with a question about whether the new seizure medication might be causing the digestive issues, nobody...every specialist, identifies conflicts between medications, and answers questions that fall between specialties....
Managing Your Child's Heart Health with Muscular Dystrophy: A Parent's Guide to Cardiomyopathy Monitoring
Medical > Cardiology

Managing Your Child's Heart Health with Muscular Dystrophy: A Parent's Guide to Cardiomyopathy Monitoring

By Andrew Donovan
...damages cells. In the heart, that damage is cumulative and irreversible. The monitoring protocol exists because early detection buys time. Heart medications started before imaging shows damage can preserve function for years. This isn't about catching a disease that might develop. It's about tracking...

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