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Sled Hockey for Children with Mobility Disabilities
Lifestyle > Recreation

Sled Hockey for Children with Mobility Disabilities

By Franklin Morris
...standing up, they qualify. Some programs also welcome kids with balance disorders, muscular dystrophy, or conditions that make traditional skating unsafe...they qualify. Some programs also welcome kids with balance disorders, muscular dystrophy, or conditions that make traditional skating unsafe even if they're...
Navigating Respiratory Health for Children with Special Needs
Special Needs > Respiratory Health

Navigating Respiratory Health for Children with Special Needs

By Dylan Hayes
...challenges. Some common conditions include asthma, chronic lung disease, and muscular disorders that affect breathing. It's important for parents and caregivers...Some common conditions include asthma, chronic lung disease, and muscular disorders that affect breathing. It's important for parents and caregivers to work...
Empowering Families in the Muscular Dystrophy Journey
Special Needs > Muscular Dystrophy

Empowering Families in the Muscular Dystrophy Journey

By Grace Willis
Understanding Muscular Dystrophy....Dystrophy. Muscular dystrophy...of genetic disorders that cause...types of muscular dystrophy...Duchenne muscular dystrophy...dystrophy Becker muscular dystrophy...Limb-girdle muscular dystrophy...Congenital muscular dystrophy...specific type of muscular dystrophy...Children with muscular dystrophy...and muscle disorders Physical therapist...
Adapted Physical Education: What Schools Must Provide
Lifestyle > Recreation

Adapted Physical Education: What Schools Must Provide

By Franklin Morris
...education, including: Physical disabilities like cerebral palsy, spina bifida, muscular dystrophy, or limb differences Visual or hearing impairments that create...impairments that create safety concerns in a gym setting Autism spectrum disorder when sensory overload or social demands prevent participation Intellectual...
Swimming and Aquatic Therapy: Why Water Works for Children with Special Needs
Health > Exercise

Swimming and Aquatic Therapy: Why Water Works for Children with Special Needs

By Emma Turner
...therapy for children with cerebral palsy, Down syndrome, autism spectrum disorder, muscular dystrophy, spina bifida, and many other conditions. What makes...children with cerebral palsy, Down syndrome, autism spectrum disorder, muscular dystrophy, spina bifida, and many other conditions. What makes water so...
CMS Just Published the Rule That Defines Medicaid's 'Medically Frail' Exemption. Here's What Disability Families Need to Do Now.
Legal > Government Benefits

CMS Just Published the Rule That Defines Medicaid's 'Medically Frail' Exemption. Here's What Disability Families Need to Do Now.

By James Williams
...qualifies. Disabling mental disorder: Serious mental illness...including major depressive disorder, bipolar disorder, schizophrenia,...depressive disorder, bipolar disorder, schizophrenia, and PTSD...provider. Substance use disorder: Active diagnosis or...palsy, spina bifida, muscular dystrophy, Down syndrome,...syndrome, autism spectrum disorder, and physical impairments...
Cardiac Risks for Female Carriers of Duchenne Muscular Dystrophy
Medical > Cardiology

Cardiac Risks for Female Carriers of Duchenne Muscular Dystrophy

By Andrew Donovan
When a son is diagnosed with Duchenne muscular dystrophy, the genetic counseling that follows almost always turns to his...conversation usually reassures her in the same breath: carriers don't get muscular dystrophy. That much is accurate, and her muscles will work normally her...
Cardiomyopathy Monitoring Schedule for Duchenne Muscular Dystrophy
Medical > Cardiology

Cardiomyopathy Monitoring Schedule for Duchenne Muscular Dystrophy

By Andrew Donovan
Ask a family managing Duchenne muscular dystrophy what they want from their child's cardiology team, and the answer is usually the same: a calendar. Not a general sense that the heart needs...
Assistive Technology for Eating Independence
Lifestyle > Independence

Assistive Technology for Eating Independence

By Nora Bloom
...tools exist, how to get them covered, or how to introduce them at home without turning mealtime into a therapy session. Children with cerebral palsy, muscular dystrophy, low muscle tone, stroke recovery, or limb differences face motor challenges that make standard utensils frustrating or unusable. The right...
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
Assistive Tech > Mobility

Trexo Robotic Gait Trainer: What Families Should Know About the Technology

By Dr. Fiona Maddox
...as a Class I medical device in the United States and has Health Canada approval. Primary users include children with cerebral palsy, spina bifida, muscular dystrophy, and other conditions that affect mobility. How Robotic Gait Training Works. Walking involves...
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
Special Needs > Muscular Dystrophy

Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life

By Amelia Harper
...real in 2026: ELEVIDYS, the first FDA-approved gene therapy for Duchenne muscular dystrophy, now has expanded approval. More boys qualify. RGX-202 is in...moxeparvovec) is a one-time gene therapy approved for boys with Duchenne muscular dystrophy. It delivers a modified version of the dystrophin gene (the protein...
Evolving IEPs for Progressive Conditions: Planning Ahead When Your Child's Needs Will Change
Special Needs > Muscular Dystrophy

Evolving IEPs for Progressive Conditions: Planning Ahead When Your Child's Needs Will Change

By Amelia Harper
...IEPs for progressive conditions. A child with muscular dystrophy, spinal muscular atrophy, or Friedreich's...conditions. A child with muscular dystrophy, spinal muscular atrophy, or Friedreich's ataxia doesn't have needs...progressive conditions, it's not. A child with muscular dystrophy in September may have been walking independently,...

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