Special Needs

Articles

...real in 2026: ELEVIDYS, the first FDA-approved gene therapy for Duchenne muscular dystrophy, now has expanded approval. More boys qualify. RGX-202 is in...moxeparvovec) is a one-time gene therapy approved for boys with Duchenne muscular dystrophy. It delivers a modified version of the dystrophin gene (the protein...

...IEPs for progressive conditions. A child with muscular dystrophy, spinal muscular atrophy, or Friedreich's...conditions. A child with muscular dystrophy, spinal muscular atrophy, or Friedreich's ataxia doesn't have needs...progressive conditions, it's not. A child with muscular dystrophy in September may have been walking independently,...

...the annual checkup. You've watched your child's walking pattern change over the past year, and you know what's coming. For children with Duchenne muscular dystrophy, the transition to full-time wheelchair use typically happens between ages 10 and 14. This transition is predictable, gradual, and can be...

...conditions documented by a licensed professional The definition of "severe physical disability" is broad. It includes conditions like cerebral palsy, muscular dystrophy, spinal cord injuries, blindness, deafness, and mobility impairments. If your condition substantially limits a major life activity like...

...reallocates resources. Calcium gets pulled from bone. Density decreases. Fracture threshold drops. For children with cerebral palsy, spina bifida, spinal muscular atrophy, or other conditions that limit weight-bearing, this process starts early and compounds over time. Studies show non-ambulatory children have...

If your child has Duchenne or Becker muscular dystrophy, cardiomyopathy isn't a risk you're...disease is the leading cause of death in Duchenne muscular dystrophy. Nearly every person with DMD will develop...eliminates functional dystrophin entirely. In Becker muscular dystrophy, some dystrophin is produced, so cardiac...

...therapists, occupational therapists, and pediatricians recommend aquatic therapy for children with cerebral palsy, Down syndrome, autism spectrum disorder, muscular dystrophy, spina bifida, and many other conditions. What makes water so effective comes down to four properties that no gym floor or therapy mat can...

...without requiring physical effort. For children with cerebral palsy, spinal muscular atrophy, or muscular dystrophy, that difference is significant. Energy...physical effort. For children with cerebral palsy, spinal muscular atrophy, or muscular dystrophy, that difference is significant. Energy spent propelling a manual...

...Challenges. Children with special needs may face unique respiratory health challenges. Some common conditions include asthma, chronic lung disease, and muscular disorders that affect breathing. It's important for parents and caregivers to work closely with healthcare providers to understand their child's specific...

Understanding Muscular Dystrophy. Muscular...Muscular Dystrophy. Muscular dystrophy is...many types of muscular dystrophy that...are: Duchenne muscular dystrophy Becker...dystrophy Becker muscular dystrophy Limb-girdle...Limb-girdle muscular dystrophy Congenital...dystrophy Congenital muscular dystrophy Symptoms...specific type of muscular dystrophy your...Children with muscular dystrophy need...

Understanding Muscular Dystrophy....Dystrophy. Muscular dystrophy...types of muscular dystrophy...Duchenne muscular dystrophy...dystrophy Becker muscular dystrophy...Limb-girdle muscular dystrophy...dystrophy Muscular dystrophy...Daily Life. Muscular dystrophy...common with muscular dystrophy....Living with muscular dystrophy...who have muscular dystrophy...Family. Muscular dystrophy...

...Importance of Research for Muscular Dystrophy. Research is very...finding new treatments for muscular dystrophy. Scientists are...disease and test new medicines. Muscular dystrophy causes muscles to...the government helps pay for muscular dystrophy research. This support...exciting area of research for muscular dystrophy. The goal is to...