Results
Medical > Cardiology
Vital Footsteps Towards Heart Health for Down Syndrome Individuals: Prevention, Treatment, and Lifestyle Adjustments
...common cardiac malformation they face. Understanding the role of heart in the human physiology helps us better understand the unique circumstances that Down...with appropriate treatment and lifestyle changes, individuals can lead a normal and healthy life. Prevention and Treatment for Heart Disease in Down Syndrome...
Research > Genetics
Clues to Treating Cancers Found in Genomes
...companies recently announced that sequencing the human genome–each person's individual DNA blueprint–would...effort to sequence 600 pediatric cancers and the normal DNA of the children who have them. St. Jude Chief..."We want to understand: What mutations cause a normal cell to turn into cancer?" In the other study involved...
Lifestyle > Self-Care
Recognizing Caregiver Burnout vs Normal Stress
Clinical markers distinguish burnout from stress so caregivers know which state they're in and what response it requires.
Lifestyle > Self-Care
When Caregiver Guilt Requires Professional Help
...when it pulls you away from relationships or responsibilities outside...caregiving, it has crossed from normal emotional terrain into something...looks like when you get there. Normal Guilt vs. Clinical Guilt. Normal...Guilt vs. Clinical Guilt. Normal guilt in caregiving is situational....key difference is function. Normal guilt might make you uncomfortable,...
Lifestyle > Independence
Building Decision-Making Skills for Young Adults with Disabilities
...trade-offs. They might choose their daily clothes without hesitation but freeze when the choice involves long-term consequences they can't visualize. This is normal skill variation, the same pattern you'd see in any 16-year-old, magnified by disability-specific processing differences. The skills that matter most:...
Career > Interviewing
Handling Illegal Interview Questions About Disability
...ask about your medical condition. Or they want to know if you'll need "special accommodations" before they've even made an offer. The questions feel normal, asked in friendly tones by interviewers who genuinely don't know they're crossing a line. But they're illegal under the Americans with Disabilities...
News > Advocacy
The DOJ May Delay the ADA's Web Accessibility Deadline. Here's What Disability Families Need to Know.
...compliance deadline for state and local government web accessibility under the ADA. The rule's contents haven't been made public, and it bypasses the normal public comment process, unprecedented for an accessibility regulation. The deadline applies to governments with populations of 50,000 or more. Starting...
Special Needs > Spina Bifida
Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
...at discharge. Some failures present acutely within hours. Others develop gradually over days or weeks, with subtle behavioral shifts that blur into normal childhood variation until they don't. Here's what you're watching for, and when it's time to act. Acute Shunt Failure: Hours Matter. Acute failure...
Special Needs > Multiple Sclerosis
Managing MS Fatigue in Children: What Parents and Schools Need to Know
...without warning and doesn't correlate with how much your child has done. A child without MS who runs around at recess gets tired afterward. That's normal. A child with MS can feel utterly drained after sitting still and taking notes for 20 minutes. The effort of concentrating, filtering stimuli, and...
Special Needs > Epilepsy
School Seizure Action Plans: What Every Parent and Teacher Needs to Know
...one-page medical document that tells school staff exactly what to do when your child has a seizure. It describes what the seizure looks like, what's normal for your child, when to administer rescue medication, and when to call 911. It's individual, not generic. The first seizure at school is often the...
Special Needs > Cancer
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
...disabilities requiring long-term support. The survivorship phase is not a return to normal. It's a transition to a different kind of medical and developmental management,...developing organs, radiation alters growing tissue, surgery removes or disrupts normal anatomy. The younger your child was at treatment, the more vulnerable their...
Social Engagement > Friends and Family
How to Help Your Child with Special Needs Build and Keep Friendships
...practicing scenarios at home, and doing the follow-up work that early friendships require. Start With What Your Child Talks About, Not What Would Make Them "Normal". The fastest way to derail a friendship attempt is to push your child toward activities you think will help them fit in. A child who loves trains...