Results
Health > Mental Health
Pitfall #7: Holding On
...Clear. Pitfall #7: Holding On I'm not a parent, so I can only imagine how difficult it must be...you love and care for. I remember riding with my parents the first time we dropped my brother Willie off...first time we dropped my brother Willie off for a respite weekend. He'd be spending two days with a group...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...hours. You hear "respite care" mentioned...to pay for it. Respite care isn't one...ARCH National Respite Network runs...states include respite hours as a covered...The Lifespan Respite Care Program...every type of respite care available,...need it. What Respite Care Is. Respite...Respite Care Is. Respite care is temporary...stability, and keeps parents functional over...
Social Engagement > Friends and Family
Two Moms Couldn't Find Reliable Sitters for Their Kids with Autism. So They Built Their Own Network.
Most parents who have a child with significant care needs have...to fix itself. They created the Special Needs Respite Connection of SW Cook and Will Counties, a Facebook...services. What the Group Does. The setup is practical. Parents post what they need. Caregivers post what they...
Parenting > Self-Care
Resources to Reduce Stress in Parents
One of the biggest challenges that parents of children on the autism spectrum must cope with is their own stress. How you manage your stress can be a huge factor in both the quality of your...
Therapies > Other
What is Recreation Therapy?
...to achieve an overall healthy, balanced life. The need for leisure for parents and children with special needs is great. They need the respite and skills...leisure for parents and children with special needs is great. They need the respite and skills as they age. As children with special needs grow into adulthood,...
Financial > Grants
Susie Bean Helps Families with Special Needs
...families in need of support, medication, counseling, health insurance, and respite care. "It is apparent to me that these services are expensive and no one...autism or mental illness in need of financial assistance. "We do not want parents to deny their child life-changing services due to lack of funds," says Dr....
Special Needs > Cerebral Palsy
Hip Surveillance for Children with Cerebral Palsy: A Parent's Guide to the Monitoring Schedule
Proactive hip X-ray monitoring prevents painful dislocation in children with CP. Here's the schedule by GMFCS level.
Social Engagement > Dating and Relationships
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
...spent years building frameworks for things other parents take for granted. First relationships are no different....intervene: none of this has a template, and most parents find themselves working it out as it arrives. Start...Conversation Before Puberty. The mistake most parents make is waiting until their teen shows interest...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
How to evaluate trial participation: phase, risk categories, volunteer rights, investigator credibility, and peer support networks.
Research > Brain Science
Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke
You've heard the term before. Neuroplasticity. Your child's neurologist mentions it. The physical therapist brings it up. Someone in a parent support group says it's why early intervention matters. But here's what gets confusing: you're hearing it in three different contexts (cerebral palsy,...
News > Research
When Studies Disagree: How to Make Sense of Conflicting Research as a Special Needs Parent
...research exists across nearly every intervention parents consider: gluten-free diets for autism, screen...methods, and slowly building toward answers. But parents don't have the luxury of waiting decades for scientific..."improvement" as standardized test scores; another as parent-reported functional communication. One...
News > Research
What Evidence-Based Really Means in Special Education and Therapy
...reassuring, like science has settled the question. But here's what most parents don't realize: the term can describe six different levels of evidence, from...as lived experience. It's not generalizable science. If a provider cites parent testimonials as their evidence base, you're looking at the lowest rung....