Results
Special Needs > Spina Bifida
Latex Allergy in Spina Bifida: Why It Develops and How to Stay Safe
...that closet with you, not literally...you're managing spina bifida, you...managing spina bifida, you collect...feel like "parenting" so much as...allergy in spina bifida isn't...allergy in spina bifida isn't rare....of children with spina bifida,...children with spina bifida, depending...with spina bifida, depending...repeated contact with latex proteins...catheterization with latex gloves,...
Special Needs > Spina Bifida
Spina Bifida: From Patient to Parent
Spina Bifida... Spina Bifida is one..."cleft spine" or "open..."open spine," it...cases, the spinal cord....born with Spina...with Spina Bifida...Spina Bifida Myelomeningocele...a son with Spina...with Spina Bifida...Spina Bifida Occulta,...lived with Spina...with Spina Bifida...Spina Bifida would...living with Spina...with Spina Bifida,...Spina Bifida, Lohr...tug-of-war with her head...trip with his dad,...
Parenting > The Early Years
Managing Pregnancy When Baby Isn't Perfect
...babies are not born perfect with "10 little fingers and...child is going to be born with a birth defect, can be...120,000 babies are born with a defect. The most common...lip/palate, Down Syndrome, Spina bifida (when the spinal...lip/palate, Down Syndrome, Spina bifida (when the spinal cord develops...Spina bifida (when the spinal cord develops incorrectly,...
Parenting > Diagnosis
Explaining Your Child's Diagnosis to Family: What to Say and How Much to Share
...it. A more useful goal is a working relationship with each person, which sometimes requires understanding..."Maya has a developmental delay, and she is working with a great team." No diagnostic label, no history....version goes to anyone who spends unsupervised time with your child. Grandparents, an aunt who babysits,...
Parenting > Adulthood
Social Security Benefits in Adulthood: What Every Parent of a Child with Disabilities Must Plan For
SSI at 18, benefits on a parent's work record, and the financial moves that protect eligibility while your child builds independence.
Parenting > Adulthood
Medicaid Waiver Services for Adults: How to Apply and What They Cover
...most of it, for adults with disabilities in the United...work walk into adulthood with a plan. Families who don't...life runs on, like help with morning routines, a day...specific group: adults with intellectual and developmental...developmental disabilities, people with physical disabilities,...physical disabilities, people with traumatic brain injuries,...
Parenting > Adulthood
Self-Advocacy Skills for Young Adults: Teaching Your Child to Speak Up
A pediatrician looks at a 14-year-old and asks how the new medication is working. Before the teenager can find the words, a parent answers with the full report: the side effects, the missed doses, the improvement at school. The whole exchange takes thirty seconds, and versions of it happen in...
Parenting > Adulthood
Sexuality Education for Young Adults with Disabilities
...parents of young adults with disabilities have had...topic for students with disabilities entirely,...to safety. I've sat with families after something...unnecessary for someone with a disability. Start...a disability. Start with What Needs Teaching....education for young adults with disabilities covers...personal boundaries with caregivers and romantic...
Parenting > Adulthood
Letter of Intent for Special Needs Planning: What to Include
...her insulin but needs someone standing nearby who won't say anything unless she asks. Here's what belongs in it. Daily Routine, Hour by Hour. Start with a typical weekday from wake-up to bedtime. Wake time, morning routine order, what triggers a meltdown versus what prevents one, meal preferences and...
Parenting > Adulthood
Day Programs for Adults with Intellectual Disabilities: What to Look For
...day of your visit. Then ask if that schedule looks the same on a Wednesday with no visitors. A strong program can answer both questions without hesitation,...moment half the group goes on a grocery trip and the other half stays behind with fewer staff. Ask how long staff typically stay, and how new hires...
Parenting > Adulthood
Job Coaches for Young Adults with Disabilities: How They Help and How to Access Them
...for a Job Coach as an Accommodation. The Americans with Disabilities Act requires employers with 15 or more...Americans with Disabilities Act requires employers with 15 or more employees to provide reasonable accommodations...reasonable accommodations to qualified employees with disabilities, and a job coach can be one of them....
Lifestyle > Self-Care
Recognizing Caregiver Burnout vs Normal Stress
...even a vacation. You go through caregiving tasks with competence but feel nothing while doing them. Someone...like yourself. Is this just what special needs parenting looks like, or is it something else? The distinction...When the immediate pressure eases, stress eases with it. Rest helps. A weekend away makes a difference....