Results
Research > Genetics
Clues to Treating Cancers Found in Genomes
...human genome–each person's...sequencing the genomes of patients...patients with cancer might lead...of the Pediatric Cancer...Pediatric Cancer Genome...Cancer Genome Project,...Genome Project, which...sequence 600 pediatric cancers...pediatric cancers and the...turn into cancer?" In the...in the project, researchers...of eye cancer. The results...growth of cancer could be...Jude for cancer treatment...their genomes sequenced...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...lifespan or adulthood research. The rest focused on early intervention and pediatric care. Private foundations working in these spaces are scarcer, and the...avoidance. Small patient populations don't generate the donor urgency that cancer or heart disease do. Academic prestige doesn't cluster around disability...
Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...without transition support. They're screened for cancer less often. They're less physically active, and...system that wasn't designed for adults who had pediatric disabilities. Fewer than half of children with...syndrome, or intellectual disabilities grew up seeing pediatric specialists who understood their baseline. Those...
Special Needs > Cancer
Returning to School After Childhood Cancer: What Families Need to Know
Your child finished cancer treatment six months ago....what to ask for. What Cancer Treatment Does to the...barrier because some pediatric cancers directly involve...because some pediatric cancers directly involve the brain...system. In targeting cancer cells, chemotherapy also...known as "chemobrain" or cancer-related cognitive impairment....
Special Needs > Autism Spectrum
Taming the Stigma of Autism
...will be diagnosed with autism spectrum disorders (ASD) than with childhood cancer, diabetes, and pediatric AIDS combined. There is good news, however, according...autism spectrum disorders (ASD) than with childhood cancer, diabetes, and pediatric AIDS combined. There is good news, however, according to Dr. Barbara Firestone,...
Assistive Tech > Mobility
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Routine maintenance checklist for pediatric wheelchairs, gait trainers, and walkers to prevent breakdowns and ensure safety.
Assistive Tech > Mobility
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
...device does, who it helps, what the research says, and what it realistically costs to access. What the Trexo Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for home and clinical use. It supports children as young as 18 months and up to 100 pounds. The device consists of motorized...
Assistive Tech > Mobility
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Your pediatric therapist just suggested it's time to transition from your child's adaptive stroller to a wheelchair. Your child is four years old, still working...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
FDA grants RMAT designation to GS-100 gene therapy for NGLY1 Deficiency based on early clinical improvements in motor function.
Assistive Tech > Mobility
When to Replace Your Child's Wheelchair: Fit Indicators and Insurance Timeline
...six months ago now leave your child's feet dangling. These signs indicate safety issues and confirm that your child has outgrown their wheelchair. Pediatric wheelchairs have a limited lifespan not because they wear out, but because children grow. Unlike adult wheelchairs expected to last five years or...
Special Needs > Multiple Sclerosis
Managing MS Fatigue in Children: What Parents and Schools Need to Know
...no amount of rest seems to fix. You know it's the MS. The school thinks it's behavior. MS fatigue is the most common and most disabling symptom in pediatric multiple sclerosis, but it's invisible. Teachers see a child who looks fine and assume the exhaustion is laziness or lack of effort. Parents see a...
Special Needs > Multiple Sclerosis
School Accommodations for Children with Multiple Sclerosis
...records. But to a teacher who has never worked with pediatric MS, they can look like inattention, laziness,...Schools. Most educators have never encountered pediatric MS. The condition affects roughly 3 to 5 percent...support. Fatigue is the most common symptom in pediatric MS, affecting up to 80 percent of children with...