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Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Assistive Tech > Mobility

Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe

By Dr. Fiona Maddox
...mobility, canceled plans, and a child who can't go where they need to go. Most wheelchair breakdowns are preventable. The problem isn't that parents don't care about maintenance. It's that nobody tells them which checks prevent failures and which ones are just nice-to-have vendor recommendations that get ignored...
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
Assistive Tech > Mobility

Trexo Robotic Gait Trainer: What Families Should Know About the Technology

By Dr. Fiona Maddox
...understand the limits. You know the brain changes carefully. And still, you find yourself searching: is...What the Trexo Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for home and clinical...support, and a base unit that the child moves through. Caregivers operate it via a touchscreen tablet, adjusting...
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Assistive Tech > Mobility

Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?

By Dr. Fiona Maddox
Your pediatric therapist just suggested it's time to transition from your child's adaptive...folding for families who need to fit equipment in a standard vehicle, and caregiver-controlled mobility when a child can't self-propel. The best models...
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Special Needs > Cystic Fibrosis

The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management

By Franklin Morris
...teen's CF care has been...the same pediatric team for...adult CF care is a documented...to derail care. Parents...Happens. Most pediatric CF centers...Others extend pediatric care to 21...pediatric care to 21 if...with the care team. What...Adult CF Care. Pediatric...CF Care. Pediatric CF care is...Pediatric CF care is family-centered....Adult CF care assumes the...their own care. Your presence...
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
...one-time intervention outside any clinical trial. For families navigating rare pediatric diagnoses, that news raises the question everyone asks: does this apply...Knowing where that infrastructure exists and what questions to ask your care team matters more than following every breakthrough announcement. What CRISPR...
Private Foundations Funding Disability Research: A Guide for Advocates and Families
Research > Funding

Private Foundations Funding Disability Research: A Guide for Advocates and Families

By Kelsey James
...lifespan or adulthood research. The rest focused on early intervention and pediatric care. Private foundations working in these spaces are scarcer, and the grants...adulthood research. The rest focused on early intervention and pediatric care. Private foundations working in these spaces are scarcer, and the grants...
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
Health > Treatment

Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work

By Henry Bennett
...Research shows that over 30% of medication errors in pediatric care occur at home, often because doses are missed,...that over 30% of medication errors in pediatric care occur at home, often because doses are missed,...their medication, you're managing a gap in their care, not just a difficult moment. This guide covers...
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...neurodevelopmental disabilities transfer to adult care. They smoke more than their peers...wasn't designed for adults who had pediatric disabilities. Fewer than half of children...intellectual disabilities grew up seeing pediatric specialists who understood their baseline....this population, and how to adjust care plans for cognitive or communication...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
Your child's pediatric spina bifida clinic has...coordinates bladder and bowel care, tracks orthopedic concerns....turns 18, ages out of pediatrics, and that entire support...Spina Bifida Clinical Care Guidelines say you should...gap creates preventable care crises. Transition planning...them taking over their care immediately. It's about...
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
Research > Funding

Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions

By Kelsey James
...adulthood research. The rest funded early intervention, motor development, and pediatric outcomes. For families planning long-term care into adulthood, that 2.3%...motor development, and pediatric outcomes. For families planning long-term care into adulthood, that 2.3% represents the entire knowledge base informing...
Pediatric Wheelchairs: Manual vs. Power and When Kids Are Ready
Assistive Tech > Mobility

Pediatric Wheelchairs: Manual vs. Power and When Kids Are Ready

By Dr. Jack Davis
...conservative advice is costing a child developmental time is where a good pediatric power wheelchair guide has to start. Manual vs. Power: What the Decision...coordination to self-propel, when the family needs maximum portability, or when caregivers will be doing most of the pushing. They're lighter, easier to transport,...
Demystifying Gastrointestinal Problems in Special Needs Kids
Medical > Gastroenterology

Demystifying Gastrointestinal Problems in Special Needs Kids

By Dr. Mia Wilson
...approaches and treatment modalities. It's a nuanced area that warrants careful exploration and keen understanding. Why Gastrointestinal Problems are...lifestyle modifications, medical interventions, and regular consultations with pediatric gastroenterologists. Implementing Dietary...

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