Results
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Your child's pediatric spina bifida clinic has been your... Your child's pediatric spina bifida clinic has been your anchor for years. The...your child turns 18, ages out of pediatrics, and that entire support structure...out of pediatrics, and that entire support structure ends. Most families start...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...coordinated by the same pediatric team for years....structural. Adult clinics operate differently,...arrive at adult clinics already managing...Happens. Most pediatric CF centers transition...Others extend pediatric care to 21 if the...21 if the adult clinic has capacity constraints....Adult CF Care. Pediatric CF care is family-centered....coordinate with the clinic. Adult CF care...
Health > Exercise
Making Exercise Stick at Home: Therapy-Backed Activities That Fit Real Family Life
...packet is failing you. It assumes you have 30 minutes of uninterrupted time, clinic-grade equipment, and a child who will cooperate with something that looks...activities at once. They do fewer, consistently. The Inspired Treehouse, a pediatric therapy resource, recommends starting with one activity per routine and...
Career > Accommodations
Patients Share the Significance of Transition
Transferring from pediatrics into the adult...transitioning from pediatrics to adult-oriented...transitioning from the pediatric to the adult clinic...pediatric to the adult clinic because I find...noticed from the pediatric clinic is that...the pediatric clinic is that the doctor...come with me to clinic but once I was...still take me to clinic but...
Parenting > Adulthood
Advice on Transition from Pediatrics to Adult
...about her experience going from a pediatric clinic to an adult clinic. This patient...experience going from a pediatric clinic to an adult clinic. This patient explains...from a pediatric clinic to an adult clinic. This patient explains to us her common...my CF). Transitioning to the adult clinic was awful. I felt that my new doctor...
Global Insights > Healthcare
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
...problem. What a Medical Home Is. A medical home is not a building. It's not a clinic with a special designation on the door. It's a care model, an organizing...provider responsible for coordinating everything else. The American Academy of Pediatrics defines it as care that is accessible, continuous, comprehensive, family-centered,...
Therapies > Occupational
Occupational Therapy
...participate in activities of daily life. Pediatric occupational therapists work in a...various systems. Some examples include: pediatric intensive care units, rehabilitation...units, rehabilitation units, private clinics, and schools. Pediatric therapists...units, private clinics, and schools. Pediatric therapists work with children and...
Medical > Pediatrics
The Pain Your Child Can't Tell You About: A Parent's Guide to Recognizing Discomfort in Nonverbal Children
...clinical language, often without the framework to do it. There are validated tools designed for exactly this situation. They're used in hospitals, pain clinics, and research settings to assess pain in children who can't self-report. Most parents don't know they exist. This is how you use them. Why Behavioral...
Assistive Tech > Mobility
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Routine maintenance checklist for pediatric wheelchairs, gait trainers, and walkers to prevent breakdowns and ensure safety.
Assistive Tech > Mobility
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
...Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for...designed for home and clinical use. It supports children as young as 18 months and...harness system for partial weight support, and a base unit that the child moves...length, and the amount of weight support. It connects to the child's existing...
Assistive Tech > Mobility
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Your pediatric therapist just suggested it's time to transition...built for children who need significant postural support during transport. These devices excel at three...devices excel at three things: full trunk and head support for kids with limited postural control, compact...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
FDA grants RMAT designation to GS-100 gene therapy for NGLY1 Deficiency based on early clinical improvements in motor function.