Results
Medical > Gastroenterology
Demystifying Gastrointestinal Problems in Special Needs Kids
...modifications, medical interventions, and regular consultations with pediatric gastroenterologists. Implementing Dietary...modifications, medical interventions, and regular consultations with pediatric gastroenterologists. Implementing Dietary...
Medical > Pediatrics
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Your child sees a pulmonologist, a gastroenterologist, a neurologist, and a developmental pediatrician. Each specialist orders...measurable difference. What a Medical Home Does. The American Academy of Pediatrics defines a medical home as care that's accessible, family-centered, coordinated,...
Assistive Tech > Mobility
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Routine maintenance checklist for pediatric wheelchairs, gait trainers, and walkers to prevent breakdowns and ensure safety.
Assistive Tech > Mobility
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
...device does, who it helps, what the research says, and what it realistically costs to access. What the Trexo Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for home and clinical use. It supports children as young as 18 months and up to 100 pounds. The device consists of motorized...
Assistive Tech > Mobility
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Your pediatric therapist just suggested it's time to transition from your child's adaptive stroller to a wheelchair. Your child is four years old, still working...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
FDA grants RMAT designation to GS-100 gene therapy for NGLY1 Deficiency based on early clinical improvements in motor function.
Assistive Tech > Mobility
When to Replace Your Child's Wheelchair: Fit Indicators and Insurance Timeline
...six months ago now leave your child's feet dangling. These signs indicate safety issues and confirm that your child has outgrown their wheelchair. Pediatric wheelchairs have a limited lifespan not because they wear out, but because children grow. Unlike adult wheelchairs expected to last five years or...
Special Needs > Multiple Sclerosis
Managing MS Fatigue in Children: What Parents and Schools Need to Know
...no amount of rest seems to fix. You know it's the MS. The school thinks it's behavior. MS fatigue is the most common and most disabling symptom in pediatric multiple sclerosis, but it's invisible. Teachers see a child who looks fine and assume the exhaustion is laziness or lack of effort. Parents see a...
Special Needs > Multiple Sclerosis
School Accommodations for Children with Multiple Sclerosis
...records. But to a teacher who has never worked with pediatric MS, they can look like inattention, laziness,...Schools. Most educators have never encountered pediatric MS. The condition affects roughly 3 to 5 percent...support. Fatigue is the most common symptom in pediatric MS, affecting up to 80 percent of children with...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...has been coordinated by the same pediatric team for years. Somewhere between...When the Transition Happens. Most pediatric CF centers transition patients between...developmentally ready. Others extend pediatric care to 21 if the adult clinic has...team. What Changes in Adult CF Care. Pediatric CF care is family-centered. Parents...
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...specifically for that child's genetic mutation, built from scratch as a one-time intervention outside any clinical trial. For families navigating rare pediatric diagnoses, that news raises the question everyone asks: does this apply to my child? The short answer is that most children with rare disorders won't...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...averaged $22.7 million annually from 2014 to 2023. Only 2.3% of that went to lifespan or adulthood research. The rest focused on early intervention and pediatric care. Private foundations working in these spaces are scarcer, and the grants they offer tend to be smaller and more narrowly targeted. The structural...