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The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Special Needs > Cystic Fibrosis

The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management

By Franklin Morris
...coordinated by the same pediatric team for years. Somewhere...lung function, and medication non-adherence during...Transition Happens. Most pediatric CF centers transition...ready. Others extend pediatric care to 21 if the...can manage their medication schedule independently,...in Adult CF Care. Pediatric CF care is family-centered....appointments, manage medication schedules, and coordinate...
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
Health > Treatment

Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work

By Henry Bennett
Medication administration...that over 30% of medication errors in pediatric...medication errors in pediatric care occur at...won't take their medication, you're managing...the most common medication challenges: pill...sensory-driven medication resistance. These...taking actual medication. M&Ms and Skittles...practice from medication stakes. Your child...
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...system that wasn't designed for adults who had pediatric disabilities. Fewer than half of children with...syndrome, or intellectual disabilities grew up seeing pediatric specialists who understood their baseline. Those...developmental milestones looked like in context, what medication side effects mattered for this population, and...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
Your child's pediatric spina bifida clinic has been your anchor for...concerns. Then your child turns 18, ages out of pediatrics, and that entire support structure ends. Most...shunt does and why it matters. The names of their medications and what each one treats. This isn't about them...
Transitioning to Adult Healthcare: Preparing Your Young Adult with Special Needs for the Move
Health > Treatment

Transitioning to Adult Healthcare: Preparing Your Young Adult with Special Needs for the Move

By Henry Bennett
...their communication style, what medications worked and which ones didn't. Now...where to begin. The transition from pediatric to adult healthcare is a documented...Do they know the names of their medications and what they treat? Can they describe...the next appointment, keeping a medication list...
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...specialist orders tests, adjusts medications, and sends notes to the pediatrician's...question about whether the new seizure medication might be causing the digestive issues,...Home Does. The American Academy of Pediatrics defines a medical home as care that's...specialist, identifies conflicts between medications, and answers questions that fall...
Alternative Medicine for Special Needs: A Parent's Guide to Evidence, Safety, and Decision-Making
Health > Alternative Medicine

Alternative Medicine for Special Needs: A Parent's Guide to Evidence, Safety, and Decision-Making

By Kelsey James
...don't disclose CAM use to their pediatricians. The American Academy of Pediatrics recommends open conversation about complementary therapies, but the data...and implement alternatives without professional guidance, which creates medication interaction risks and eliminates an important safety check. Which Therapies...
Children’s Medical Records: 5 Things to Watch
Parenting > The Early Years

Children’s Medical Records: 5 Things to Watch

By SpecialNeeds.com Editor
...stunningly wrong about whether or not their children are at a healthy weight, highlighted by a study released December 2011 in the Archives of Pediatrics and Adolescent Medicine. We are so familiar with our kids that they often look normal to us even when they are not. And more than 75% of parents...
New Treatment Guidelines for ADHD
Special Needs > Attention Deficit Disorders

New Treatment Guidelines for ADHD

By SpecialNeeds.com Editor
...American Academy of Pediatrics (AAP) created some...guidelines recommend medication treatment for children...such early use of medication "will further the...prescription of medication to young children."...side effects of the medications, such as loss of...by treatment with medication if the behavioral...easily available and medication is. Read more here....
Managing MS Fatigue in Children: What Parents and Schools Need to Know
Special Needs > Multiple Sclerosis

Managing MS Fatigue in Children: What Parents and Schools Need to Know

By Ms. Amelia Peterson
...no amount of rest seems to fix. You know it's the MS. The school thinks it's behavior. MS fatigue is the most common and most disabling symptom in pediatric multiple sclerosis, but it's invisible. Teachers see a child who looks fine and assume the exhaustion is laziness or lack of effort. Parents see a...
School Accommodations for Children with Multiple Sclerosis
Special Needs > Multiple Sclerosis

School Accommodations for Children with Multiple Sclerosis

By Ms. Amelia Peterson
...records. But to a teacher who has never worked with pediatric MS, they can look like inattention, laziness,...Schools. Most educators have never encountered pediatric MS. The condition affects roughly 3 to 5 percent...support. Fatigue is the most common symptom in pediatric MS, affecting up to 80 percent of children with...
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
...specifically for that child's genetic mutation, built from scratch as a one-time intervention outside any clinical trial. For families navigating rare pediatric diagnoses, that news raises the question everyone asks: does this apply to my child? The short answer is that most children with rare disorders won't...

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