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Returning to School After Childhood Cancer: What Families Need to Know
Special Needs > Cancer

Returning to School After Childhood Cancer: What Families Need to Know

By Aiden Moore
...speed, attention span, and executive function. The neurological consequences require specific accommodations,...crosses the blood-brain barrier because some pediatric cancers directly involve the brain or central...simultaneously. That's not effort or attention. That's neurology. The brain's short-term storage capacity has been...
Managing MS Fatigue in Children: What Parents and Schools Need to Know
Special Needs > Multiple Sclerosis

Managing MS Fatigue in Children: What Parents and Schools Need to Know

By Ms. Amelia Peterson
...the most common and most disabling symptom in pediatric multiple sclerosis, but it's invisible. Teachers...Tiredness. MS fatigue isn't solved by sleep. It's neurologically driven, caused by the immune system attacking...your child is fragile or incapable. It means the neurological cost of everyday tasks is higher for them than...
School Accommodations for Children with Multiple Sclerosis
Special Needs > Multiple Sclerosis

School Accommodations for Children with Multiple Sclerosis

By Ms. Amelia Peterson
...teacher who has never worked with pediatric MS, they can look like inattention,...educators have never encountered pediatric MS. The condition affects roughly...Fatigue is the most common symptom in pediatric MS, affecting up to 80 percent of...with a good night's sleep. It's a neurological symptom that interferes with sustained...
Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke
Research > Brain Science

Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke

By Emily Thompson
You've heard the term before. Neuroplasticity. Your child's neurologist mentions it. The physical therapist brings it up. Someone in a parent...hearing it in three different contexts (cerebral palsy, Down syndrome, pediatric stroke) and you're wondering if it means the same thing across all of them....
Living with Pediatric MS: A Complete Guide for Families
Special Needs > Multiple Sclerosis

Living with Pediatric MS: A Complete Guide for Families

By Ms. Amelia Peterson
...sclerosis, the road ahead can feel overwhelming. Pediatric MS is rare (roughly 3–5% of all MS cases begin...it any easier. You're stepping into a world of neurologists, MRIs, disease-modifying therapies, and school...first few months after diagnosis. Understanding Pediatric MS. Multiple sclerosis is an autoimmune disease...
Demystifying Gastrointestinal Problems in Special Needs Kids
Medical > Gastroenterology

Demystifying Gastrointestinal Problems in Special Needs Kids

By Dr. Mia Wilson
...Special Needs Children Many children with special needs also contend with neurological differences. These variations can significantly affect gastrointestinal...lifestyle modifications, medical interventions, and regular consultations with pediatric gastroenterologists. Implementing Dietary...
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
Your child sees a pulmonologist, a gastroenterologist, a neurologist, and a developmental pediatrician. Each specialist orders tests, adjusts...measurable difference. What a Medical Home Does. The American Academy of Pediatrics defines a medical home as care that's accessible, family-centered, coordinated,...
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
Global Insights > Healthcare

Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies

By Ivy Sullivan
When your child sees a neurologist, a physical therapist, an occupational therapist,...same information, that the PT knows what the neurologist recommended, that the school has the pulmonologist's...coordinating everything else. The American Academy of Pediatrics defines it as care that is accessible, continuous,...
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Assistive Tech > Mobility

Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe

By Dr. Fiona Maddox

Routine maintenance checklist for pediatric wheelchairs, gait trainers, and walkers to prevent breakdowns and ensure safety.

Trexo Robotic Gait Trainer: What Families Should Know About the Technology
Assistive Tech > Mobility

Trexo Robotic Gait Trainer: What Families Should Know About the Technology

By Dr. Fiona Maddox
...device does, who it helps, what the research says, and what it realistically costs to access. What the Trexo Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for home and clinical use. It supports children as young as 18 months and up to 100 pounds. The device consists of motorized...
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Assistive Tech > Mobility

Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?

By Dr. Fiona Maddox
Your pediatric therapist just suggested it's time to transition from your child's adaptive stroller to a wheelchair. Your child is four years old, still working...
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
News > Research

The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.

By Lucas Johnson

FDA grants RMAT designation to GS-100 gene therapy for NGLY1 Deficiency based on early clinical improvements in motor function.

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