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The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...wasn't designed for adults who had pediatric disabilities. Fewer than half of...intellectual disabilities grew up seeing pediatric specialists who understood their...disabilities grew up seeing pediatric specialists who understood their baseline. Those...(internists, family medicine doctors, specialists in adult systems) were trained on...
From Referral to First Appointment: Cutting Through the Specialist Waitlist for Your Special Needs Child
Medical > Pediatrics

From Referral to First Appointment: Cutting Through the Specialist Waitlist for Your Special Needs Child

By Dr. Opal Stenson
...progress. Then the specialist's office calls...pre-authorization before the specialist will see your...exists until the specialist's office tells...the visit. The specialist's office usually...explaining why the specialist visit is medically...for in-network specialists, but you'll still...and whether the specialist accepts your plan....plan. Call the specialist's billing department...
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...developmental pediatrician. Each specialist orders tests, adjusts...coordination across specialists, therapies, equipment,...American Academy of Pediatrics defines a medical home...home doesn't replace specialists. It coordinates them....test results from every specialist, identifies conflicts...care from three or more specialists, use medical technology...
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
Global Insights > Healthcare

Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies

By Ivy Sullivan
...responsible for coordinating everything else. The American Academy of Pediatrics defines it as care that is accessible, continuous, comprehensive, family-centered,...has a primary care provider who knows the full picture, tracks all the specialists, maintains the overall care plan, and makes sure nothing falls through...
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
...intervention outside any clinical trial. For families navigating rare pediatric diagnoses, that news raises the question everyone asks: does this apply...built right now, including the research centers, clinical trials, and specialized expertise at major children's hospitals, will determine which conditions...
Sensory Integration: Building Blocks
Special Needs > General Special Needs

Sensory Integration: Building Blocks

By SpecialNeeds.com Editor
...no child can overcome the obstacles alone. They need to be treated by a pediatric occupational therapist specializing in treatment for sensory processing...obstacles alone. They need to be treated by a pediatric occupational therapist specializing in treatment for sensory processing disorders. The earlier you treat...
Private Foundations Funding Disability Research: A Guide for Advocates and Families
Research > Funding

Private Foundations Funding Disability Research: A Guide for Advocates and Families

By Kelsey James
...averaged $22.7 million annually from 2014 to 2023. Only 2.3% of that went to lifespan or adulthood research. The rest focused on early intervention and pediatric care. Private foundations working in these spaces are scarcer, and the grants they offer tend to be smaller and more narrowly targeted. The structural...
Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke
Research > Brain Science

Neuroplasticity Across Disabilities: The Science of Brain Change in Children with Cerebral Palsy, Down Syndrome, and Stroke

By Emily Thompson
...it's why early intervention matters. But here's what gets confusing: you're hearing it in three different contexts (cerebral palsy, Down syndrome, pediatric stroke) and you're wondering if it means the same thing across all of them. Can a brain damaged by oxygen deprivation at birth rewire the same way...
Brain-Computer Interfaces for Children Who Can't Speak: Research, Reality, and How to Access Trials
Research > Assistive Tech

Brain-Computer Interfaces for Children Who Can't Speak: Research, Reality, and How to Access Trials

By William Lewis
...and "usable by a child with sensory sensitivities" is enormous. This article separates what's available now from what's being tested, explains why pediatric BCI design is fundamentally different from adult applications, and shows you exactly how to find trials your child might qualify for. What Brain-Computer...
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
Health > Treatment

Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work

By Henry Bennett
...daily battle that impacts treatment outcomes and family stress levels. The stakes aren't small. Research shows that over 30% of medication errors in pediatric care occur at home, often because doses are missed, spit out, or refused entirely. When a child can't or won't take their medication, you're managing...
Physical Therapy for Children with Special Needs: A Complete Parent's Guide
Therapies > Physical

Physical Therapy for Children with Special Needs: A Complete Parent's Guide

By Grace Lewis
...through the world with more confidence and less pain. This guide covers what pediatric PT is, how to know if your child needs it, what happens during evaluations...therapist you can trust. What Physical Therapy Addresses in Children. Pediatric PT focuses on gross motor skills: the large movements that use major muscle...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
Your child's pediatric spina bifida clinic has been your anchor for years. The team knows your...care, tracks orthopedic concerns. Then your child turns 18, ages out of pediatrics, and that entire support structure ends. Most families start thinking...

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