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Global Insights > Healthcare
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
...wasn't designed for adults who had pediatric disabilities. Fewer than half of...intellectual disabilities grew up seeing pediatric specialists who understood their...disabilities grew up seeing pediatric specialists who understood their baseline. Those...(internists, family medicine doctors, specialists in adult systems) were trained on...
Medical > Pediatrics
From Referral to First Appointment: Cutting Through the Specialist Waitlist for Your Special Needs Child
...progress. Then the specialist's office calls...pre-authorization before the specialist will see your...exists until the specialist's office tells...the visit. The specialist's office usually...explaining why the specialist visit is medically...for in-network specialists, but you'll still...and whether the specialist accepts your plan....plan. Call the specialist's billing department...
Medical > Pediatrics
When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
...developmental pediatrician. Each specialist orders tests, adjusts...coordination across specialists, therapies, equipment,...American Academy of Pediatrics defines a medical home...home doesn't replace specialists. It coordinates them....test results from every specialist, identifies conflicts...care from three or more specialists, use medical technology...
Global Insights > Healthcare
Navigating Healthcare for Children with Special Needs: Medical Homes, Care Coordination, and Insurance Strategies
...responsible for coordinating everything else. The American Academy of Pediatrics defines it as care that is accessible, continuous, comprehensive, family-centered,...has a primary care provider who knows the full picture, tracks all the specialists, maintains the overall care plan, and makes sure nothing falls through...
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...intervention outside any clinical trial. For families navigating rare pediatric diagnoses, that news raises the question everyone asks: does this apply...built right now, including the research centers, clinical trials, and specialized expertise at major children's hospitals, will determine which conditions...
Special Needs > General Special Needs
Sensory Integration: Building Blocks
...no child can overcome the obstacles alone. They need to be treated by a pediatric occupational therapist specializing in treatment for sensory processing...obstacles alone. They need to be treated by a pediatric occupational therapist specializing in treatment for sensory processing disorders. The earlier you treat...
Assistive Tech > Mobility
Mobility Equipment Maintenance: Keeping Wheelchairs and Walkers Safe
Routine maintenance checklist for pediatric wheelchairs, gait trainers, and walkers to prevent breakdowns and ensure safety.
Assistive Tech > Mobility
Trexo Robotic Gait Trainer: What Families Should Know About the Technology
...device does, who it helps, what the research says, and what it realistically costs to access. What the Trexo Robotic Gait Trainer Is. Trexo is a pediatric robotic gait trainer designed for home and clinical use. It supports children as young as 18 months and up to 100 pounds. The device consists of motorized...
Assistive Tech > Mobility
Adaptive Strollers vs. Wheelchairs: Which Mobility Device Does Your Child Need?
Your pediatric therapist just suggested it's time to transition from your child's adaptive stroller to a wheelchair. Your child is four years old, still working...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
FDA grants RMAT designation to GS-100 gene therapy for NGLY1 Deficiency based on early clinical improvements in motor function.
Assistive Tech > Mobility
When to Replace Your Child's Wheelchair: Fit Indicators and Insurance Timeline
...six months ago now leave your child's feet dangling. These signs indicate safety issues and confirm that your child has outgrown their wheelchair. Pediatric wheelchairs have a limited lifespan not because they wear out, but because children grow. Unlike adult wheelchairs expected to last five years or...
Special Needs > Multiple Sclerosis
Managing MS Fatigue in Children: What Parents and Schools Need to Know
...no amount of rest seems to fix. You know it's the MS. The school thinks it's behavior. MS fatigue is the most common and most disabling symptom in pediatric multiple sclerosis, but it's invisible. Teachers see a child who looks fine and assume the exhaustion is laziness or lack of effort. Parents see a...