Understanding Congenital Heart Diseases: Prevention, Treatment, and Care for Special Needs Individuals. Heart health is at the core of our overall wellbeing, requiring a nuanced understanding of its complexities, especially for individuals with special needs. Cardiology, the science that dissects the secrets of the heart, provides vital insights that can catalyze the development of innovative treatment methodologies and care techniques for congenital heart diseases. The realm of special needs is diverse, encompassing individuals with a wide range of abilities and health concerns. When it comes to cardiac conditions, the field is no less broad, encompassing various forms of congenital heart diseases. These health anomalies are present at birth, affecting the structure and function of an individual's heart. Congenital Heart Diseases The World Health Organization reports that congenital anomalies affect approximately 3% of all newborns worldwide. Congenital heart diseases encompass a spectrum of conditions, including defects in the heart's structure, electrical system malfunctions, and even conditions that affect the efficiency of the heart muscles. Understanding the prevention, treatment, and care for these diseases demands a deep dive into the latest advancements in cardiology. The discipline is consistently evolving, providing new revelations that can significantly impact the lives of special needs individuals who grapple with these conditions. Prevention of Congenital Heart Diseases The prevention of congenital heart diseases begins prenatally. Expectant mothers are advised to undergo routine prenatal screening to identify any congenital anomalies that might be present in the fetus. Folic acid supplements are often recommended to...

Cardiology Revelations: Tackling Congenital Heart Diseases in Special Needs

Understanding Congenital Heart Diseases: Prevention, Treatment, and Care for Special Needs Individuals. Heart health is at the core of our overall wellbeing, requiring a nuanced understanding of its complexities, especially for individuals with special needs. Cardiology, the science that dissects the secrets of the heart, provides vital insights that can catalyze the development of innovative treatment methodologies and care techniques for congenital heart diseases. The realm of special needs is diverse, encompassing individuals with a wide range of abilities and health concerns. When it comes to cardiac conditions, the field is no less broad, encompassing various forms of congenital heart diseases. These health anomalies are present at birth, affecting the structure and function of an individual's heart.  Congenital Heart Diseases  The World Health Organization reports that congenital anomalies affect approximately 3% of all newborns worldwide. Congenital heart diseases encompass a spectrum of conditions, including defects in the heart's structure, electrical system malfunctions, and even conditions that affect the efficiency of the heart muscles. Understanding the prevention, treatment, and care for these diseases demands a deep dive into the latest advancements in cardiology. The discipline is consistently evolving, providing new revelations that can significantly impact the lives of special needs individuals who grapple with these conditions.  Prevention of Congenital Heart Diseases  The prevention of congenital heart diseases begins prenatally. Expectant mothers are advised to undergo routine prenatal screening to identify any congenital anomalies that might be present in the fetus. Folic acid supplements are often recommended to...

A recent article in the press described one couple's "abortion pact." That is, if any pregnancy had a chance of a fetal anomaly they would abort. The couple felt that because of their age – she was 37 and he was in his 40s – they had an increased risk of having a child with a disability and they were not prepared to care for such a child. I was going to write an emotionally detached post about this article, because I've had a few weeks to calm down from when I first read it. Yeah, right. I cry whenever I think about it. I was going write about the difficulty in making a decision when you simply don't know. You don't know what the future will hold for you or your child. You don't know if the test is accurate. You don't know if the science is sound or what medical interventions will come. There are no crystal balls. I was going to write about the notion of 'chasing normal' and how it permeates our society's quests for perfection. Really, how perfect are you? What if someone decided that you were somehow wrong or 'damaged.' Would you still be here? I was going to write about how this is a reflection of consumer culture and our objectification of people – that we think we can buy perfection and we (as parents) deserve nothing but 'the best.' Designer handbag, imported car, designer baby. I was going...

Article reflects on a couple's choice to abort if a fetus shows anomalies, discussing societal attitudes towards disability and perfection.

Prenatal Testing &#8211; the Abortion Pact

A recent article in the press described one couple's "abortion pact." That is, if any pregnancy had a chance of a fetal anomaly they would abort. The couple felt that because of their age – she was 37 and he was in his 40s – they had an increased risk of having a child with a disability and they were not prepared to care for such a child. I was going to write an emotionally detached post about this article, because I've had a few weeks to calm down from when I first read it. Yeah, right. I cry whenever I think about it.  I was going write about the difficulty in making a decision when you simply don't know. You don't know what the future will hold for you or your child. You don't know if the test is accurate. You don't know if the science is sound or what medical interventions will come. There are no crystal balls.  I was going to write about the notion of 'chasing normal' and how it permeates our society's quests for perfection. Really, how perfect are you? What if someone decided that you were somehow wrong or 'damaged.' Would you still be here?  I was going to write about how this is a reflection of consumer culture and our objectification of people – that we think we can buy perfection and we (as parents) deserve nothing but 'the best.' Designer handbag, imported car, designer baby.  I was going...

Prenatal Testing &#8211; the Abortion Pact

Cerebral palsy is a lifelong disorder caused by damage to a child's brain before, during, or shortly after birth. Symptoms vary in severity and include stiff muscles, involuntary movements, or cognitive deficits. Some children are able to function quite normally, while others will require continued care throughout their lives. According to Healthcare Global, recent research suggests the use of a new drug that might limit the development of cerebral palsy if administered early enough. One of the hypothesized causes of cerebral palsy is that the brain damage is a result of inflammation in the child's brain; this inflammation stems from an infection during pregnancy. In a recent research study, rabbits with similar characteristics of cerebral palsy were administered a drug that targets and treats the inflammation in the brain. The rabbits who were treated showed much better muscle and movement control than the rabbits who did not receive the drug. If the new drug works for humans as well as it did for the rabbits, it could be a very promising treatment for brain damage caused by prenatal infections. There have been no human clinical trials or an examination of side effects. Researchers say the drug must be administered right after birth in order to be effective.

New research suggests a drug could limit cerebral palsy progression if given early, showing promise in rabbits, pending human trials.

Is There a New Drug for Cerebral Palsy?

 Cerebral palsy is a lifelong disorder caused by damage to a child's brain before, during, or shortly after birth. Symptoms vary in severity and include stiff muscles, involuntary movements, or cognitive deficits. Some children are able to function quite normally, while others will require continued care throughout their lives.   According to Healthcare Global, recent research suggests the use of a new drug that might limit the development of cerebral palsy if administered early enough.   One of the hypothesized causes of cerebral palsy is that the brain damage is a result of inflammation in the child's brain; this inflammation stems from an infection during pregnancy. In a recent research study, rabbits with similar characteristics of cerebral palsy were administered a drug that targets and treats the inflammation in the brain. The rabbits who were treated showed much better muscle and movement control than the rabbits who did not receive the drug.   If the new drug works for humans as well as it did for the rabbits, it could be a very promising treatment for brain damage caused by prenatal infections. There have been no human clinical trials or an examination of side effects. Researchers say the drug must be administered right after birth in order to be effective. 


Women who take antidepressants and learn that they are pregnant must consider not just the potential risks of the drugs but also the impact of untreated depression on a developing fetus. Untreated depression could lead to low birth weight, irritability in the child and developmental delays. Side effects of antidepressants can be similarly harmful: miscarriage, premature birth, and breathing problems in newborns. "There's no path that's really risk-free," Pec Indman, a therapist who specializes in perinatal mood and anxiety disorders, tells the Chicago Tribune. "Illness has a risk and treatment has a risk." The question is, which is riskier? One of the more common effects of antidepressant exposure in newborns is post-delivery withdrawal-like symptoms. These could include respiratory problems, tremors, feeding difficulties, and jitteriness. Last year one study linked use of antidepressants in the first trimester with a fourfold increase in the chance of a child having autism, though many experts warn that these findings are not conclusive, as it was the first and only study to make the association and there was evidence of methodological weakness. Preterm delivery has been associated with antidepressant exposure more consistently, but no long-term effects on children have been shown. Dozens of studies have been focused on the safety of using antidepressants such as selective serotonin reuptake inhibitors (SSRIs) during pregnancy. The problem is that it is not clear whether adverse effects showing in newborns are the result of the medication or the depression itself. Babies born to depressed mothers can have elevated cortisol...

Pregnant women on antidepressants face risks either from the meds (e.g., birth issues) or untreated depression's impact on the fetus.

Antidepressants and Pregnancy: Weighing Risks

Women who take antidepressants and learn that they are pregnant must consider not just the potential risks of the drugs but also the impact of untreated depression on a developing fetus. Untreated depression could lead to low birth weight, irritability in the child and developmental delays. Side effects of antidepressants can be similarly harmful: miscarriage, premature birth, and breathing problems in newborns. "There's no path that's really risk-free," Pec Indman, a therapist who specializes in perinatal mood and anxiety disorders, tells the Chicago Tribune. "Illness has a risk and treatment has a risk." The question is, which is riskier? One of the more common effects of antidepressant exposure in newborns is post-delivery withdrawal-like symptoms. These could include respiratory problems, tremors, feeding difficulties, and jitteriness. Last year one study linked use of antidepressants in the first trimester with a fourfold increase in the chance of a child having autism, though many experts warn that these findings are not conclusive, as it was the first and only study to make the association and there was evidence of methodological weakness. Preterm delivery has been associated with antidepressant exposure more consistently, but no long-term effects on children have been shown. Dozens of studies have been focused on the safety of using antidepressants such as selective serotonin reuptake inhibitors (SSRIs) during pregnancy. The problem is that it is not clear whether adverse effects showing in newborns are the result of the medication or the depression itself. Babies born to depressed mothers can have elevated cortisol...

Our family's story became a national discussion when, after years of unsuccessful advocating for support for our mentally and organically disabled daughter, we made a decision to send her to live with another family in another state where she would be able to get the support that eluded us. Many people assume that our story is just another adoption story and though I came to live it because we adopted, that is not at all what it is about. I am a huge proponent of adoption and I place blame on no one. Our story is our story. Our adoption, and only our adoption, was sadly built on a foundation of deceit. Perhaps for all the right reasons, our daughter's birthmother chose to hide her prenatal abuse to find the best family for her baby. Her mindset was, no doubt, that the right family could undo any of the harm she caused to the baby by her drug and alcohol abuse, no less her own psychological problems. The trouble started when she didn't tell us about that abuse. We never knew what we didn't know to know. The moral of our story is that unconditional love is just that. You do what is best for your children because you love them unconditionally. That includes letting them go, whether or not they have reached the prime age of 18. After a series of events that left the integrity of our entire family in the balance, we were forced into creating a...

Family shares struggle with support for disabled daughter, sparking national debate on special needs and system failures.

Special Needs In Our Homes: A National Discussion That Must Continue

Our family's story became a national discussion when, after years of unsuccessful advocating for support for our mentally and organically disabled daughter, we made a decision to send her to live with another family in another state where she would be able to get the support that eluded us. Many people assume that our story is just another adoption story and though I came to live it because we adopted, that is not at all what it is about. I am a huge proponent of adoption and I place blame on no one. Our story is our story. Our adoption, and only our adoption, was sadly built on a foundation of deceit. Perhaps for all the right reasons, our daughter's birthmother chose to hide her prenatal abuse to find the best family for her baby. Her mindset was, no doubt, that the right family could undo any of the harm she caused to the baby by her drug and alcohol abuse, no less her own psychological problems. The trouble started when she didn't tell us about that abuse. We never knew what we didn't know to know. The moral of our story is that unconditional love is just that. You do what is best for your children because you love them unconditionally. That includes letting them go, whether or not they have reached the prime age of 18. After a series of events that left the integrity of our entire family in the balance, we were forced into creating a...

They say that a large percentage of women who receive a prenatal diagnosis of Down syndrome have an abortion. But I will not point my finger at the women who have given their babies back to God without ever holding them in their arms. Why? Because I understand. I know how they feel. Although abortion was never an option for us, I still wrestled with the exact same feelings these women had. I cried bitterly wondering why we had been given a "broken" baby. I didn't want Nichole. Deep inside I wanted her to die. Can you believe that? I wanted my baby to die because I was scared. So scared. I had more questions than I had answers, and everywhere I looked Down syndrome seemed like a life sentence for my daughter...and for me. When you are pregnant, and your baby has a possibility of having Down syndrome, doctors respond. Their response, sadly, is not a welcoming one. Most do not offer up-to-date information, or to connect you with other parents that have children with Down syndrome. Most doctors do not talk about Down syndrome beyond their medical experience. They talk about how Down syndrome will affect your baby – a doomed medical condition – in which your child will suffer greatly, because so many things could go wrong. No. What they talk about are more tests. Many talk about a "choice," and they talk about making that choice now! They throw out inaccurate information, claiming...

A mother shares her initial fear of having a child with Down syndrome but ultimately finds love and value in her daughter's life.

Abortion and Down Syndrome

They say that a large percentage of women who receive a prenatal diagnosis of Down syndrome have an abortion.  But I will not point my finger at the women who have given their babies back to God without ever holding them in their arms. Why? Because I understand. I know how they feel. Although abortion was never an option for us, I still wrestled with the exact same feelings these women had. I cried bitterly wondering why we had been given a "broken" baby. I didn't want Nichole. Deep inside I wanted her to die. Can you believe that? I wanted my baby to die because I was scared. So scared.  I had more questions than I had answers, and everywhere I looked Down syndrome seemed like a life sentence for my daughter...and for me.  When you are pregnant, and your baby has a possibility of having Down syndrome, doctors respond. Their response, sadly, is not a welcoming one. Most do not offer up-to-date information, or to connect you with other parents that have children with Down syndrome. Most doctors do not talk about Down syndrome beyond their medical experience. They talk about how Down syndrome will affect your baby – a doomed medical condition – in which your child will suffer greatly, because so many things could go wrong. No. What they talk about are more tests. Many talk about a "choice," and they talk about making that choice now! They throw out inaccurate information, claiming...

On Prenatal Life: The evidence is increasing–traumas while being carried in the womb have a lifelong effect and can change brain function and structure permanently. One study is critical in all this. Lancet reported a study of blood samples taken from 46 fetuses where the abdomen was punctured and a needle inserted into the liver. The fetuses responded with a 590 percent rise in stress hormone cortisol levels, and 183 percent rise in endorphin levels, the internally manufactured painkiller. It is clear that the fetus can respond to pain and can set in motion all the biochemical factors involved in pain and stress. It is also likely that these rises affect other hormones. These enormous pains can be coded and stored for a lifetime affecting our behavior.[1] A trauma in the womb can change the set-point for noradrenaline output for life, making the person susceptible to lifelong tension, irritability, and hyperactivity (and hypermotility). While some stress is galvanizing and can aid adaptation, prolonged, inordinate stress can produce maladaptation: not for just the time of the trauma, but for a lifetime. Long term excess cortisol secretion can last a lifetime, damaging brain structures such as the hippocampus, resulting in memory loss later in life. There is evidence that the more painkillers a woman takes during labor the more likely her child will be to abuse drugs or alcohol later on. Karin Nyberg of the University of Gothenburg, Sweden, looked at medication given to the pregnant mothers of 69...

Prenatal traumas affect lifespan behavior and stress responses, impacting emotional health and addiction risks.

Excerpt from "Life Before Birth"

On Prenatal Life:  The evidence is increasing–traumas while being carried in the womb have a lifelong effect and can change brain function and structure permanently. One study is critical in all this. Lancet reported a study of blood samples taken from 46 fetuses where the abdomen was punctured and a needle inserted into the liver. The fetuses responded with a 590 percent rise in stress hormone cortisol levels, and 183 percent rise in endorphin levels, the internally manufactured painkiller. It is clear that the fetus can respond to pain and can set in motion all the biochemical factors involved in pain and stress.  It is also likely that these rises affect other hormones. These enormous pains can be coded and stored for a lifetime affecting our behavior.[1] A trauma in the womb can change the set-point for noradrenaline output for life, making the person susceptible to lifelong tension, irritability, and hyperactivity (and hypermotility). While some stress is galvanizing and can aid adaptation, prolonged, inordinate stress can produce maladaptation: not for just the time of the trauma, but for a lifetime. Long term excess cortisol secretion can last a lifetime, damaging brain structures such as the hippocampus, resulting in memory loss later in life.  There is evidence that the more painkillers a woman takes during labor the more likely her child will be to abuse drugs or alcohol later on. Karin Nyberg of the University of Gothenburg, Sweden, looked at medication given to the pregnant mothers of 69...

Prenatal traumas affect lifespan behavior and stress responses, impacting emotional health and addiction risks.

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Special Needs
Articles

Cardiology Revelations: Tackling Congenital Heart Diseases in Special Needs

Prenatal Testing – the Abortion Pact

Is There a New Drug for Cerebral Palsy?

Antidepressants and Pregnancy: Weighing Risks

Special Needs In Our Homes: A National Discussion That Must Continue

Abortion and Down Syndrome

Excerpt from "Life Before Birth"

Find Providers Near You

Special Needs Articles

Cardiology Revelations: Tackling Congenital Heart Diseases in Special Needs

Prenatal Testing &#8211; the Abortion Pact

Is There a New Drug for Cerebral Palsy?

Antidepressants and Pregnancy: Weighing Risks

Special Needs In Our Homes: A National Discussion That Must Continue

Abortion and Down Syndrome

Excerpt from "Life Before Birth"

Find Providers Near You

Special Needs
Articles

Prenatal Testing – the Abortion Pact