Results
Lifestyle > Self-Care
Cost Barriers to Mental Health Care for People with Intellectual Disabilities
...grocery store, and has been on the...worth of savings, and her anxiety symptoms...with intellectual and developmental disabilities...intellectual and developmental disabilities (IDD)...happens even though research consistently shows...depression, anxiety, and trauma at rates...individuals with developmental disabilities or...creates waitlists and out-of-pocket expenses...
Lifestyle > Recreation
Preventing Summer Regression in Children with Autism
...hesitating on B and skipping...dressed, and pack his...practice and therapeutic...provides. Research consistently...self-care, and academic...what the research says about...vulnerable, and how to structure...in autism research. Studies...services and structured...on Autism and Other Developmental...and Other Developmental Disabilities...behavior and communication...substantial ground, and a small percentage...
Lifestyle > Independence
When to Step Back: Balancing Support with Independence
...thirty seconds, and help became habit....becomes a barrier, and stepping back feels...stepping in. The Research on Over-Helping....on Over-Helping. Developmental psychologists...the brain adapts and stops initiating....study published in Developmental Psychology tracked...240 children with developmental disabilities...given wait time and prompting support...
Lifestyle > Art
Art Therapy for Autism: Evidence-Based Benefits and Methods
...therapy" in passing, and you nodded because...for something better. Research from the last decade...social reciprocity, and communication barriers...social interactions, and expressing needs that...therapist in a back-and-forth rhythm that mirrors...draws their family and then talks about what...Evidence for Social Skills Development. A 2019 study...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
The U.S. Food and Drug Administration...in motor function and cognitive skills...multiple body systems and is characterized...characterized by global developmental delay, cognitive...movement disorders, and alacrima, which...to expedite the development and review of regenerative...the development and review of regenerative...address issues faster and keep the trial moving...
Education > Early Intervention
Parent Coaching in Early Intervention: How You Become Your Child's Best Teacher
...she watches and takes notes....felt hard, and what you might...coaching, and if it feels...treatment, and the parent...differently, and the difference...Coaching Is (and Why It Replaces...your child's development during everyday...observes how you and your child...approach, and build confidence...isn't there. Research on parent-mediated...who learn and apply strategies...produce better developmental outcomes...
Assistive Tech > Hardware
AAC Devices and Apps: How to Choose Speech-Generating Technology
...that cost $5,000, and every vendor claims...child's communication development. The price spread...correlate with price. Research shows no clear advantage...cognitive level, and the environments...based on function and a breakdown of what...consumer tablets and dedicated speech-generating...Proloquo2Go, TouchChat, and CoughDrop. You're...survive drops, spills, and daily transport....
Social Engagement > Dating and Relationships
Sexuality Education for People with Disabilities: Why It Matters and Where to Find It
...relationships, and intimacy that...boundaries, and navigate relationships...theoretical. Research from UC Davis...intellectual and developmental...intellectual and developmental disabilities...safety, autonomy, and the ability...body autonomy, and healthy versus...what's happening and the framework...understanding their own development, asking questions...without shame, and building relationships...
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...right now, including the research centers, clinical trials,...centers, clinical trials, and specialized expertise...conditions move from "in development" to "available" over the...infrastructure exists and what questions to ask...announcement. What CRISPR Does and What It Doesn't Fix. CRISPR...at a specific location and either removes a faulty...
Research > Genetics
Chromosomal Microarray vs. Whole Genome Sequencing: Which Genetic Test Is Right for Your Child?
...find, what your insurance will cover, and how much uncertainty you can live with...or duplicated. It catches deletions and duplications as small as 50,000 base...Angelman syndrome when a child has autism, developmental delays, or unexplained intellectual...It's the most comprehensive option and catches everything WES does plus mutations...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...consent form that's thirty pages long, and a decision to make. You want to do...being asked to enroll your child in research you don't fully understand, for a drug...decision. What Phase Is the Trial, and What Does That Mean? Trials move through...figuring out dosing, side effects, and whether the drug is tolerated. This...
Research > Drug Development
Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families
...following Fragile X drug research for any length of time,...right biological pathway, and all three failed in human...human trials between 2009 and 2015. Families got very...Zatolmilast matters so much, and why I think it's worth...15 years. That matters, and families who've been waiting...missing protein (FMRP), and without that protein, a...