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Pennsylvania Just Signed Three Executive Orders to Protect Disability Families. Here's What It Means and What Other States Can Do.
News > Advocacy

Pennsylvania Just Signed Three Executive Orders to Protect Disability Families. Here's What It Means and What Other States Can Do.

By Amelia Harper
...agencies collect and share disability...the governor, and reestablish the...to continue advocacy work across the...requests for autism and disability data...comply with and now codifies...of disability rights and services...disability rights and services in Pennsylvania....nondiscrimination policy and places new limits...family members, and experts in relevant...creating a formal advocacy channel that...
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
News > Advocacy

The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.

By Henry Peterson
...research, and civil rights...civil rights protections...services, home and community-based...support, and advocacy...support, and advocacy infrastructure....independently and participate...states and networks...adults and people...technology, and advocate...their rights. CILs are...run by and for people...counseling, and training...adults and people...Living, and Rehabilitation...outcomes, and policies...Elder rights programs:...Program and Adult...
Teaching Life Skills for Independence: A Parent's Roadmap
News > Lifestyle

Teaching Life Skills for Independence: A Parent's Roadmap

By Benjamin Thompson
...who they can become, and what kind of life they...to introduce skills, and which teaching methods...where your child is right now. Life skills organize...appointments. Communication and self-advocacy: Asking...Communication and self-advocacy: Asking for help, stating...preferences, understanding rights, navigating disagreements....developmental. The right time to introduce a...
After High School: What Families Need to Know About Transition Planning
News > Advocacy

After High School: What Families Need to Know About Transition Planning

By Amelia Harper
...Then one day you look up and your child is 16, and someone...up and your child is 16, and someone mentions "transition...there since preschool ends, and if you haven't been building...planning is that bridge, and it's required by law. But...with this information, and parents often don't know...education, employment, and independent living. That...
Supported Decision-Making: An Alternative to Guardianship
Legal > Advocacy

Supported Decision-Making: An Alternative to Guardianship

By Ethan Parker
...opportunities. Discussing where and with whom they want to...their decision-making rights. Many parents approaching...situations, weigh options, and communicate their decisions....disability retains all legal rights. The supporter doesn't...them understand choices and consequences, but the principal...the person loses legal rights. Under SDM, they keep them....
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
...clinical trial. Or an advocacy organization sent an email...that's thirty pages long, and a decision to make. You...make. You want to do the right thing. But "the right thing"...right thing. But "the right thing" isn't obvious when...What Phase Is the Trial, and What Does That Mean? Trials...dosing, side effects, and whether the drug is tolerated....
Beyond the IEP: Legal Rights Parents of Children with Disabilities Should Know
Global Insights > Advocacy

Beyond the IEP: Legal Rights Parents of Children with Disabilities Should Know

By Benjamin Thompson
...what FAPE means, and understand procedural...accommodations, and state services....barriers to housing, and access to everyday...foundation for advocacy in every other...specific to schools and early intervention....gives children the right to a free appropriate...ADA is broader and applies to nearly...II covers state and local government...accommodations and government services....
The R-Word Spiked 200% Online. A Disney Actor With Down Syndrome Made a 91-Second Response Parents Need to See.
News > Advocacy

The R-Word Spiked 200% Online. A Disney Actor With Down Syndrome Made a 91-Second Response Parents Need to See.

By Amelia Harper
...(an Italian Down syndrome rights nonprofit) released a 91-second...Drum to Disability Scoop, and coalition support from...Down Syndrome Society, and five other international...things humanity used to do and doesn't anymore. What...Evolve." The tagline is direct and the execution avoids trauma...starring alongside Jude Law and Alexander...
How to Find Your Disability Community: Online Groups, Local Organizations, and Peer Support
News > Lifestyle

How to Find Your Disability Community: Online Groups, Local Organizations, and Peer Support

By Benjamin Thompson
...online forums and social media...local chapters, and peer support...to find them and evaluate whether...whether they're right for you. Major...Online Forums and Facebook Groups....offer immediacy and breadth. You...question at 2 AM and have three responses...disability rights, daily living,...accessibility, advocacy. Moderated,...against ableism and medical advice....autistic adults and teens. Strong...
Self-Advocacy for Adults with Disabilities: How to Speak Up in Medical Work and Daily Life
News > Advocacy

Self-Advocacy for Adults with Disabilities: How to Speak Up in Medical Work and Daily Life

By Amelia Harper
Self-advocacy is the skill...your life, and asserting...asserting your rights. For adults...knowing your rights and stating...your rights and stating them...To. Self-advocacy starts with...your legal rights. You can't...to state and local government...services, and access to...restaurants, hotels, and retail stores....protects your right to request...modifications and accommodations...most schools and many healthcare...
How to Be Your Child's Best Advocate: A Complete Guide to Special Needs Advocacy
News > Advocacy

How to Be Your Child's Best Advocate: A Complete Guide to Special Needs Advocacy

By Amelia Harper
...appointments, and insurance...that room. Advocacy isn't about...understanding your rights, and communicating...your rights, and communicating...the outside, and that's okay....communication skills, and legal knowledge...effective advocacy at school,...settings, and throughout...Documentation. Good advocacy begins long...capturing and organizing...progress, and the services...medical records, and correspondence...
Building Independence: A Life Skills Roadmap for Children with Special Needs
Lifestyle > Independence

Building Independence: A Life Skills Roadmap for Children with Special Needs

By Nora Bloom
...know it yet. And you won't find...faster, cleaner, and kinder in the...essential skill areas and four developmental...executive function and social navigation...household. Self-care and personal hygiene...grooming, toileting, and eating without...maintenance, and managing a living...Communication and self-advocacy...Communication and self-advocacy are the skills...understanding their rights under...

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