Results
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...federal budgets, the Simons Foundation became the safety net. Over the past decade, SFARI (Simons Foundation...rest focused on early intervention and pediatric care. Private foundations working in these spaces are...overlooks disability funding for identifiable reasons. Program officers at major foundations report spending years...
Parenting > Adulthood
Housing Options for Adults with Disabilities: From Supported Living to Independence
...living arrangements, family care homes, and independent living...homes, and independent living programs with varying levels of staff...does your child need to live safely and work toward what they want?...meal preparation, personal care, and daily structure. The provider...This setting fits people whose safety genuinely requires continuous...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...need backup care, even for..."respite care" mentioned...Respite care isn't one...in-home care, facility-based...facility-based programs, emergency...Respite Care Program...Respite Care Program offers vouchers...respite care available,...so backup care works when...Respite Care Is. Respite...Respite care is temporary...families who care for someone...worrying about safety or care...safety or care quality....
Education > Accommodations
Safety-Care: Making Least Restrictive Interventions Available.
...variety of solutions within their Safety-Care Program. Safety-care is...solutions within their Safety-Care Program. Safety-care is designed...solutions within their Safety-Care Program. Safety-care is designed to...their Safety-Care Program. Safety-care is designed to provide...Safety-care Program. Safety-care is designed to provide staff...
Parenting > General
The 2026 Child Care Crisis: What Parents of Children with Disabilities Need to Know
...called fifteen programs. Every one has...child needs child care now, not in two...The inclusive program you found online...Plan Act child care stabilization...staffing crisis. Programs serving this...Why Standard Programs Can't Meet the...licensed child care centers operate...can't be served safely within that structure....structure. The program needs to hire...
Research > Drug Development
The Drug Development Pipeline for Special Needs: What Parents Need to Know About How Treatments Go from Lab to FDA Approval
...development pipeline matters when you're making decisions about your child's care, evaluating whether to join a trial, or trying to gauge how long you might...review process at this stage, but companies can't skip it. You need animal safety data to file an Investigational New Drug (IND) application, which is the...
Research > Clinical Trials
The Questions Every Parent Should Ask Before Enrolling in a Clinical Trial
...you're accepting, and what rights you retain throughout. Questions About Safety and Risk. What are the specific risks of this trial compared to standard...and Risk. What are the specific risks of this trial compared to standard care? The consent form will list potential side effects. What you need to know...
Health > Treatment
Managing Multiple Medications for Children with Medical Complexity: A Parent's Safety Guide
...medications, you are not just a parent. You are the central coordinator for a care team that often doesn't communicate with itself. The neurologist prescribes...is watching the whole picture. That someone is you. Here's how to build a safety system that works. Start With a Master Medication List. You need one document...
Education > Early Intervention
How Your Child's Triune Brain Develops
...reptilian brain, also known as the primitive brain or basic brain. It takes care of the basics we need to survive, such as our immediate safety and our instincts....brain. It takes care of the basics we need to survive, such as our immediate safety and our instincts. It begins developing at conception and continues through...
Assistive Tech > Apps
Using Technology to Keep Autistic Children Safe
...Caregivers can take certain steps to help ensure their autistic child’s safety: · Talk to neighbors about the child's tendency to wander and how they should...to call you if the child is seen away from home. · Better secure homes or care facilities with reinforced door and window locks and audible chime systems...
Special Needs > General Special Needs
Disaster Preparedness Tips for Special Needs
...down your questions and make a checklist for disaster preparedness. Follow a checklist, such as this one, before a disaster happens: Do you have a care plan and list of medications? Do you have a two-weeks supply of medications? Do you have backups for medical equipment that requires electricity?...
Special Needs > Respiratory Health
Trach and Ventilator Care at School: A Planning Guide for Families
...homebound instruction. You're being told this is about safety, about liability, about what's realistic. The standard...children who require ventilators, tracheostomy care, and continuous medical monitoring. Schools can't...doesn't make it legally compliant. If your child can safely attend school with nursing coverage and emergency...