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When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
...pediatrician's office. But when you call with a question about whether the new seizure medication might be causing the digestive issues, nobody can answer because...might be causing the digestive issues, nobody can answer because nobody's tracking how all these pieces fit together. That gap is the coordination problem,...
Special Needs App of the Day – Seizure Tracker
Assistive Tech > Apps

Special Needs App of the Day – Seizure Tracker

By SpecialNeeds.com Editor
...Moss, creator of Seizure Tracker...Tracker Seizure Tracker Robert...Lisa Moss began tracking their son Evan's...their son Evan's seizures when he was one...old. But Evan's seizures were so frequent...help track the seizures and the medications...Develop the Seizure Tracker App?...surgery, Evan was seizure-free for about...years. When the seizures returned they...
How to Choose Safe CBD Products: Purity Testing and Quality Verification
Health > Alternative Medicine

How to Choose Safe CBD Products: Purity Testing and Quality Verification

By Kelsey James
...The Certificate of Analysis behind it is the actual evidence, and most parents shopping for a product to help with their child's anxiety, sleep, or seizure activity have never been shown how to read one. That gap matters more in this category than almost anywhere else in the supplement aisle. The FDA does...
CBD Safety Research for Children with Autism and Epilepsy
Health > Alternative Medicine

CBD Safety Research for Children with Autism and Epilepsy

By Kelsey James
...general CBD guides address. You're asking whether it's safe to add to a seizure medication regimen that took months to get right, in a body that's already...published in the New England Journal of Medicine in 2017, found a median seizure reduction of about 39 percent in the CBD group compared to 13 percent with...
Medication Management Independence for Teens with Chronic Conditions
Lifestyle > Independence

Medication Management Independence for Teens with Chronic Conditions

By Nora Bloom
...stepped back. Why the Handoff Feels Risky. Medication management isn't filing papers or doing laundry. The stakes are physiological. A missed dose of a seizure medication, an insulin error, a skipped immunosuppressant: these aren't "oops" moments. They're medical events. Parents who've spent years keeping...
Emergency Response Skills: When and How to Call 911
Lifestyle > Independence

Emergency Response Skills: When and How to Call 911

By Nora Bloom
...recognize and remember. Start with three categories: Medical emergencies: Someone is unconscious, having trouble breathing, bleeding heavily, or having a seizure that doesn't stop. Chest pain. A fall where the person can't get up. Allergic reactions with swelling or difficulty breathing. Fire or gas: Smoke...
Voice-Activated Emergency Calling for People Living Alone with Disabilities
Assistive Tech > Virtual Assistants

Voice-Activated Emergency Calling for People Living Alone with Disabilities

By Leonard Thompson
...when you fall. Your phone is charging on the kitchen counter. You can't get up. This scenario is why people living alone with mobility limitations, seizure disorders, or other disabilities need emergency calling that doesn't depend on reaching a device. Voice assistants like Alexa and Google Home have...
School Seizure Action Plans: What Every Parent and Teacher Needs to Know
Special Needs > Epilepsy

School Seizure Action Plans: What Every Parent and Teacher Needs to Know

By Emily Thompson
...has a seizure in the...child's seizures look...Generic seizure training...specific seizure pattern....pattern. A Seizure Action...does. A Seizure Action...has a seizure. It describes...what the seizure looks...first seizure at school...What a Seizure Action...school seizure action...child's seizure type(s)....Absence seizures look...tonic-clonic seizures. Focal...aware seizures look...awareness seizures. The...does the seizure usually...
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
Special Needs > Epilepsy

Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets

By Emily Thompson
...child's neurologist just told you the seizures are medication resistant. You've tried...protocols. How Dietary Therapy Works for Seizures. The ketogenic diet shifts your child's...metabolic shift appears to reduce seizure activity through multiple mechanisms....medications experience significant seizure reduction on a ketogenic diet. The...
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
Special Needs > Epilepsy

Seizure First Aid: A Step-by-Step Guide for Families and Caregivers

By Emily Thompson
...this is the seizure type that requires...to respond to seizures with no medical...parents managing seizures at home, see...complete guide to seizure first aid.) What...before the first seizure, not during it....child had a seizure recently? What...Tonic-clonic seizures involve the whole...consciousness. Absence seizures look like the...seconds. Focal seizures may involve confusion,...
Tariffs Are Raising the Cost of Wheelchairs, AAC Devices, and Medications — What Families Can Do
Assistive Tech > Mobility

Tariffs Are Raising the Cost of Wheelchairs, AAC Devices, and Medications — What Families Can Do

By Dr. Jack Davis
...abroad. Even software-only solutions run on hardware subject to tariffs. Pharmaceutical products: Specialty medications for rare genetic conditions, seizure disorders, metabolic diseases. Many rely on imported active ingredients or are manufactured entirely outside the US. Proposed tariffs up to 200% could...
Seizure First Aid: What to Do, What Not to Do, and When to Call 911
Special Needs > Epilepsy

Seizure First Aid: What to Do, What Not to Do, and When to Call 911

By Emily Thompson
...their first seizure, parents describe...things worse. Seizure first aid is...The Types of Seizures and What Each...Like. Not all seizures look alike,...Tonic-clonic seizures, sometimes...called grand mal seizures, involve the...hear the word "seizure." It typically...minutes. Absence seizures look like the...documentation. Focal seizures begin in one...Tonic-Clonic Seizure. The first...

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