Results
Special Needs > Cancer
Finding Hope and Support in the Face of Cancer
...important to remember that each person's cancer journey is unique. Experiences can vary greatly depending...effects of cancer. It's important to prioritize self-care and reach out for help when needed. Impact...effects of cancer. It's important to prioritize self-care and reach out for help when needed. Impact on Family...
Special Needs > Cancer
Leveraging Adaptive Strategies for Cancer Survivors
...treatment. While the journey is never easy, there...overall well-being. Self-Care and Coping Strategies....overall well-being. Self-Care and Coping Strategies....survivors is to prioritize self-care. This means taking...to prioritize self-care. This means taking...It also means taking care of emotional health...decisions about their care. It can also help them...
News > Lifestyle
Teaching Life Skills for Independence: A Parent's Roadmap
...right now. Life skills organize into six domains: Self-care: Bathing, grooming, dressing, toileting, eating...now. Life skills organize into six domains: Self-care: Bathing, grooming, dressing, toileting, eating...symptoms, scheduling appointments. Communication and self-advocacy: Asking for help, stating preferences,...
Special Needs > Spina Bifida
Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents
Your child's urologist mentions self-catheterization at the annual appointment....doing all the caths, all the bowel care, and the idea of handing that responsibility...small skills that compound into full self-management. Here's what that progression...who begin participating in their own care by age 8 to 10 have higher rates of...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Your teen's CF care has been coordinated...transition to adult CF care is a documented...predictable ages, and self-management skills...have to derail care. Parents who...extend pediatric care to 21 if the...directly with the care team. What Changes...Changes in Adult CF Care. Pediatric CF...Pediatric CF care is family-centered....clinic. Adult CF care assumes the patient...manages their own care. Your presence...
Education > Special Education
Aging Out of Special Education: A Parent's Guide to Transition Services and 18-22 Programs
...Independent living skills: where appropriate, goals related to daily living, self-care, and community participation Each goal must be based on age-appropriate...Independent living skills: where appropriate, goals related to daily living, self-care, and community participation Each goal must be based on age-appropriate...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...coordinates bladder and bowel care, tracks orthopedic concerns....2023 Spina Bifida Clinical Care Guidelines say you should...gap creates preventable care crises. Transition planning...can begin learning active self-management skills and because...them taking over their care immediately. It's about...shifts to hands-on skills. Self-catheterization. Bowel...
Special Needs > Down Syndrome
Your Early Intervention Roadmap for Down Syndrome: Therapy Options from Birth to Age Three
...later, language. OT focuses on fine motor skills, sensory processing, and self-care tasks like holding a spoon or transitioning to solids. The therapies...later, language. OT focuses on fine motor skills, sensory processing, and self-care tasks like holding a spoon or transitioning to solids. The therapies work...
Special Needs > Diabetes
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
...physical disability isn't just standard diabetes care with extra steps. The entire approach changes because...misread. Standard diabetes education assumes verbal self-reporting and cognitive skills that may not match...1 and type 2 diabetes management rely heavily on self-reporting. The child is supposed to recognize symptoms...
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...groups cast a wider net. These serve anyone providing care: spouses, adult children caring for aging parents...burnout, isolation, and the logistics of long-term care. If you're not a parent but you're shouldering caregiving...reality more directly than parent-focused spaces. Self-advocate...
Parenting > Self-Care
When Guilt Takes Over: A Parent's Guide to Processing the Hard Emotions
Why caregiver guilt feels different, and evidence-based techniques to process it when it shows up.
Parenting > Self-Care
How to Protect Your Marriage When Special Needs Parenting Takes Over
Daily rituals that maintain connection when caregiving crowds out everything else and why different grief timelines matter.