Results
Special Needs > Spina Bifida
Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents
...urologist mentions self-catheterization at...caths, all the bowel care, and the idea of handing...compound into full self-management. Here's...They're the foundation for social participation,...class three times a day for the nurse. A young...work schedule around a parent's availability. The families...participating in their own care by age 8 to 10 have...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
...teen's CF care has been...pediatric team for years. Somewhere...adult CF care is a documented...ages, and self-management...to derail care. Parents...derail care. Parents who start...early as 16 for patients...pediatric care to 21 if...with the care team. What...Adult CF Care. Pediatric...Pediatric CF care is family-centered....family-centered. Parents sit in on...Adult CF care assumes the...their own care. Your presence...
Education > Special Education
Aging Out of Special Education: A Parent's Guide to Transition Services and 18-22 Programs
...services should begin at any age if appropriate for your child. Transition planning isn't a separate...where appropriate, goals related to daily living, self-care, and community participation Each goal must...appropriate, goals related to daily living, self-care, and community participation Each goal must be...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...been your anchor for years. The team...bladder and bowel care, tracks orthopedic...Bifida Clinical Care Guidelines say...creates preventable care crises. Transition...learning active self-management skills...realistic timeline for gradual skill transfer....taking over their care immediately. It's...moving from "my parents handle everything"...hands-on skills. Self-catheterization....
Social Engagement > Support Groups
Finding Your People: A Complete Guide to Support Groups for Special Needs Families
...groups for special...serves. Parent support...designed for parents...designed for parents raising...shared parenting challenges....challenges. Parent to Parent...Parent to Parent USA explicitly...providing care: spouses,...caring for aging parents...for aging parents with disabilities,...programs for caregivers...long-term care. If you're...you're not a parent but you're...directly than parent-focused...spaces. Self-advocate...
Parenting > Self-Care
When Guilt Takes Over: A Parent's Guide to Processing the Hard Emotions
...guilt in special needs parenting is qualitatively...from the guilt most parents experience. It's intensified...Different. Typical parental guilt usually has...When you take time for yourself and immediately...and then feel guilty for feeling relieved. This...don't apply to most parenting situations: Ongoing...grief cycles. Many parents of children with disabilities...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...backup care, even...care, even for a few..."respite care" mentioned...to pay for it. Respite...Respite care isn't...in-home care, facility-based...Respite Care Program...to $500 for qualifying...respite care available,...backup care works...Respite Care Is. Respite...Respite care is temporary...caregiving for families...families who care for someone...who care for someone...step away for a few...safety or care quality....keeps parents functional...
Medical > Psychiatry
When Behavior Becomes Self-Harm: A Parent's Guide to Managing Self-Injurious Behavior in Children with Intellectual Disabilities
...attention-seeking. It's self-injurious behavior,...therapist, or 911. Self-injurious behavior...when to escalate care isn't intuitive....evaluation to crisis care. What Self-Injurious...crisis care. What Self-Injurious Behavior...head-banging, hand-biting, self-scratching, hair-pulling,...distinct from stimming (self-stimulatory behavior),...not failing as a parent. The behavior is...
Lifestyle > Self-Care
Beyond Survival Mode: A Recovery Plan for Caregiver Burnout
...sufficient. If you've been running on empty for months, if you can't remember the last...chronic depletion that's been building for months or years. The clinical markers...psychological syndrome that affects 5–9% of all parents and significantly higher rates among...more problem. You resent your child for needing you,...
Education > Early Intervention
IDEA Part C Explained: Your Complete Guide to Early Intervention Services for Babies and Toddlers
...more months. What most parents don't know is that...federal program designed for exactly this moment...and Part B takes over for preschool-age children....Who Qualifies. Many parents hesitate to call because...standard was designed for exactly that uncertainty....emotional regulation, and self-care skills like eating...regulation, and self-care skills like eating...
Parenting > Self-Care
Super Moms and Super Dads: Find Your Fortress of Solitude
As parents, we spend time...day taking care of the people...Super Dad — the self-sacrificing...to be a hero for our families,...not just as parents. We have to...taking time for ourselves can...happy, healthy parent is likely to...demands of parenting. Yet, collectively,...showed that parents are even less...likely than non-parents to carve out...carve out time for themselves....
Parenting > Self-Care
Resources to Reduce Stress in Parents
One of the biggest challenges that parents of children on the autism spectrum must cope with...difficult time showing patience and understanding for your child who is struggling, and a cycle will develop...stress, thanks to piling up medical bills and copays for therapy and other services, some of which may not...