Special Needs

Articles

...every therapy session, you're failing your child. If you take an afternoon for yourself, you're neglecting them. There's no middle ground in this pattern,...caregiving decisions. "The therapist thinks I'm not doing enough at home." "Other parents at the IEP meeting think I'm overreacting." You can't know what they're thinking,...

...break, particularly in communication, self-care, and academic skills. But regression...particularly in communication, self-care, and academic skills. But regression...Regression. Summer regression isn't a myth parents invented. It's a documented phenomenon...recommended year-round programming for...

...skills organize into six domains: Self-care: Bathing, grooming, dressing, toileting,...skills organize into six domains: Self-care: Bathing, grooming, dressing, toileting,...scheduling appointments. Communication and self-advocacy: Asking for help, stating preferences,...Communication and self-advocacy: Asking for help, stating preferences, understanding...

...urologist mentions self-catheterization at...caths, all the bowel care, and the idea of handing...compound into full self-management. Here's...They're the foundation for social participation,...class three times a day for the nurse. A young...work schedule around a parent's availability. The families...participating in their own care by age 8 to 10 have...

...teen's CF care has been...pediatric team for years. Somewhere...adult CF care is a documented...ages, and self-management...to derail care. Parents...derail care. Parents who start...early as 16 for patients...pediatric care to 21 if...with the care team. What...Adult CF Care. Pediatric...Pediatric CF care is family-centered....family-centered. Parents sit in on...Adult CF care assumes the...their own care. Your presence...

...services should begin at any age if appropriate for your child. Transition planning isn't a separate...where appropriate, goals related to daily living, self-care, and community participation Each goal must...appropriate, goals related to daily living, self-care, and community participation Each goal must be...

...been your anchor for years. The team...bladder and bowel care, tracks orthopedic...Bifida Clinical Care Guidelines say...creates preventable care crises. Transition...learning active self-management skills...realistic timeline for gradual skill transfer....taking over their care immediately. It's...moving from "my parents handle everything"...hands-on skills. Self-catheterization....

...groups for special...serves. Parent support...designed for parents...designed for parents raising...shared parenting challenges....challenges. Parent to Parent...Parent to Parent USA explicitly...providing care: spouses,...caring for aging parents...for aging parents with disabilities,...programs for caregivers...long-term care. If you're...you're not a parent but you're...directly than parent-focused...spaces. Self-advocate...

...guilt in special needs parenting is qualitatively...from the guilt most parents experience. It's intensified...Different. Typical parental guilt usually has...When you take time for yourself and immediately...and then feel guilty for feeling relieved. This...don't apply to most parenting situations: Ongoing...grief cycles. Many parents of children with disabilities...

...backup care, even...care, even for a few..."respite care" mentioned...to pay for it. Respite...Respite care isn't...in-home care, facility-based...Respite Care Program...to $500 for qualifying...respite care available,...backup care works...Respite Care Is. Respite...Respite care is temporary...caregiving for families...families who care for someone...who care for someone...step away for a few...safety or care quality....keeps parents functional...

...attention-seeking. It's self-injurious behavior,...therapist, or 911. Self-injurious behavior...when to escalate care isn't intuitive....evaluation to crisis care. What Self-Injurious...crisis care. What Self-Injurious Behavior...head-banging, hand-biting, self-scratching, hair-pulling,...distinct from stimming (self-stimulatory behavior),...not failing as a parent. The behavior is...

...sufficient. If you've been running on empty for months, if you can't remember the last...chronic depletion that's been building for months or years. The clinical markers...psychological syndrome that affects 5–9% of all parents and significantly higher rates among...more problem. You resent your child for needing you,...