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Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
Special Needs > Spina Bifida

Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know

By Dr. Evelyn Mercer

Learn to identify VP shunt malfunction signs in children with spina bifida, when to seek emergency care, and how to track symptoms.

Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents
Special Needs > Spina Bifida

Teaching Bowel and Bladder Independence in Spina Bifida: A Guide for Parents

By Dr. Evelyn Mercer
...all the caths, all the bowel care, and the idea of handing that...teach the steps your child needs to get there. Why Independence...catheterization schedule doesn't need to leave class three times a...program independently doesn't need to coordinate their work schedule...participating in their own care by age 8 to 10 have higher rates...
Appealing a Power Wheelchair Insurance Denial: A Step-by-Step Guide
Special Needs > Mobility Limitations

Appealing a Power Wheelchair Insurance Denial: A Step-by-Step Guide

By William Lewis
...what the insurance company needs to see and how the appeal process...their policies, not denying care arbitrarily. Understanding these...aid would meet the child's needs Prior authorization missing:...specific type of evidence you'll need to provide in your appeal. The...you submit anything. What You Need Before You Start. Gather these...
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Special Needs > Cystic Fibrosis

The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management

By Franklin Morris
Your teen's CF care has been coordinated...transition to adult CF care is a documented...have to derail care. Parents who start...extend pediatric care to 21 if the adult...directly with the care team. What Changes...Changes in Adult CF Care. Pediatric CF care...care. Pediatric CF care is family-centered....clinic. Adult CF care assumes the patient...manages their own care. Your presence...
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
Global Insights > Healthcare

Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed

By Ivy Sullivan
...can't afford the care your child needs....care your child needs. This is the gap...three children with special health care needs,...with special health care needs, according...special health care needs, according to KFF....needed hospital-level care but could be treated...for the Medically Needy. Here's how it works:...require institutional care without home-based...
The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care
Global Insights > Healthcare

The Healthcare Transition at 21: How to Prepare Your Child (and Yourself) for the Shift to Adult Care

By Ivy Sullivan
...disabilities transfer to adult care. They smoke more than their...than half of children with special healthcare needs aged 12 to...children with special healthcare needs aged 12 to 17 receive adequate...exist in numbers that match the need. You can start preparing for...population, and how to adjust care plans for cognitive or communication...
Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life
Special Needs > Muscular Dystrophy

Muscular Dystrophy in 2026: What Families Need to Know About Gene Therapy and Daily Life

By Amelia Harper
...also expensive, eligibility-restricted, and still unfolding in terms of long-term outcomes. And while gene therapy is making headlines, respiratory care milestones, positioning routines, cardiac monitoring, and school accommodations still define daily life for most families. This guide covers both: how...
Braille and Technology: Why Your Child with Visual Impairment Needs Both
Special Needs > Visual Impairments

Braille and Technology: Why Your Child with Visual Impairment Needs Both

By Alice Whitman
...literacy. Audio alone won't develop the reading and writing skills your child needs for school and work. Both perspectives come from people who care about your...child needs for school and work. Both perspectives come from people who care about your child's education. Both sound convincing. And you're left trying...
Animal-Assisted Therapy for Special Needs Children: A Parent's Guide to All Your Options
Therapies > Animal

Animal-Assisted Therapy for Special Needs Children: A Parent's Guide to All Your Options

By Daniel Thompson
...animal therapy for children with special needs, you'll find pages of...therapy for children with special needs, you'll find pages of results...match between what your child needs and what a program offers. Before...you commit to a program, you need to understand what kind of intervention...visits a school, hospital, or care facility to provide comfort...
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
Special Needs > Spina Bifida

Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18

By Dr. Evelyn Mercer
...coordinates bladder and bowel care, tracks orthopedic concerns....2023 Spina Bifida Clinical Care Guidelines say you should have...four-year gap creates preventable care crises. Transition planning...manage their own complex medical needs, navigate insurance, advocate...about them taking over their care immediately. It's about moving...
Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports
Special Needs > Cancer

Childhood Cancer Survivorship: Understanding Long-Term Effects and Disability Supports

By Aiden Moore
...without a roadmap. Here's what you need to know about recognizing late effects,...building the support system your survivor needs. What Late Effects Mean. Late effects...enough that surveillance is standard of care. If your child's oncology team hasn't...team hasn't discussed a survivorship care plan, ask...
Supporting Siblings When a Child Has Cancer: A Family Guide
Special Needs > Cancer

Supporting Siblings When a Child Has Cancer: A Family Guide

By Aiden Moore
...catastrophic imagination. Visibility shrinks, not because parents don't care, but because the child in treatment has immediate medical needs that consume...parents don't care, but because the child in treatment has immediate medical needs that consume available attention. A sibling who was getting help...

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