Results
Lifestyle > Self-Care
ARCH National Respite Locator: How to Find Emergency Backup Care
...child who needs specialized support. It's 9 p.m. The babysitter...The ARCH National Respite Network and Resource Center maintains...directly. Instead, it maintains a network of state and local respite...of trained providers. The network includes agencies that offer...that's accessible when regular support systems break down. How the...
Career > Finding Jobs
Ticket to Work Program: Using SSA Benefits to Find Employment
...counseling, and placement support from approved service providers....employment without dismantling the supports that keep you stable. Who...explore employment but need support and protection to try it....are part of what Employment Networks provide. What Employment...Networks provide. What Employment Networks...
Career > Advancement
Remote Work and Career Mobility: Expanding Advancement Opportunities
...inconvenience. Moving disrupts established care networks. It means finding new specialists who understand...condition, rebuilding accessible housing, and leaving support systems that took years to develop. A promotion...your medical team, accessible housing, and family support already exist. The career ladder no longer requires...
Career > Advancement
Leadership Development Programs for Employees with Disabilities
...development built into the career path. EARN (Employer Assistance and Resource Network on Disability Inclusion) pairs emerging leaders who have disabilities with...for advancement from the inside. This is mentorship with organizational support behind it: not just a senior leader offering advice in their spare time,...
News > Advocacy
The Federal Agency That Funds Independence for People with Disabilities Is Being Eliminated. Here's What Families Need to Know.
...for Independent Living, caregiver support programs, disability research, and...services, home and community-based support, and advocacy infrastructure. What...services provided primarily by states and networks of community-based programs, supporting...disabilities. National Family Caregiver Support Program: Provides respite care, counseling,...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
How to evaluate trial participation: phase, risk categories, volunteer rights, investigator credibility, and peer support networks.
Special Needs > General Special Needs
Supporting Your Other Children: A Family Guide When One Child Has Special Needs
...something specific: your other children need formal support structures designed for siblings, not just better...distress as something to manage at home. But sibling support programs, therapists who specialize in sibling...therapists who specialize in sibling dynamics, and peer networks exist specifically for this population, and most...
Social Engagement > Friends and Family
Building a Support Network: A Guide for Families Raising Children with Special Needs
...writing a novel of instructions. That network doesn't happen by accident. It's built...those who can't. Who Makes Up Your Network. Your support network isn't a single...can't. Who Makes Up Your Network. Your support network isn't a single layer of friends....Makes Up Your network. Your support network isn't a single layer of friends. It's...
Parenting > Self-Care
The Respite Care Blueprint: How to Find, Fund, and Use Backup Care
...backup care, even for a few hours. You hear "respite care" mentioned in support groups and clinic waiting rooms, but no one explains what it is, where to...need, and each has different funding streams. The ARCH National Respite Network runs a searchable locator that covers providers in all 50 states. Medicaid...
Lifestyle > Travel
Sensory-Friendly Vacation Destinations for Families with Autism and SPD
...disorder need quiet rooms, predictable routines, staff trained in autism support, and environments where a meltdown won't draw stares. Sensory-friendly and...and wheelchair-accessible aren't the same thing. The good news: a growing network of destinations has been designed or certified specifically for autism and...
Health > Mental Health
Caregiver Burnout in Special Needs Parenting: Recognition, Prevention, and Recovery
...appointment you drive 40 minutes to because it's the only provider within network. The meal your child will eat, even though you made it yesterday and the...predictable response to sustained demand without sufficient structural support. Burnout is not the same as having a hard week. It has clinical markers,...
Financial > Grants
The Lifespan Respite Care Program Was Just Renewed: Here's What Caregivers Can Get From It
...5 million child caregivers who provide unpaid support to people with disabilities, this is one of the...choose your own respite provider. Others fund networks that match families with trained workers. Some...who have been providing full-time care and need support. This is the part of the disability funding landscape...