Results
Special Needs > Spina Bifida
Latex Allergy in Spina Bifida: Why It Develops and How to Stay Safe
...catheterization with latex gloves, every medical supply that contains natural rubber latex adds to the body's exposure load. Some children develop symptoms after a handful of procedures. Others tolerate years of contact before their immune system crosses a threshold and starts reacting. You can't predict...
Special Needs > Spina Bifida
Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
...recognize it. Shunt failure doesn't always announce itself with the textbook symptoms you were handed at discharge. Some failures present acutely within hours....typically follows a recognizable pattern. It doesn't always start with all symptoms at once, but they tend to cluster and escalate quickly. The most common...
Special Needs > Respiratory Health
Asthma Management at School: What Parents of Children with Disabilities Need to Know
...treatments. A child with cognitive delays may not recognize early warning signs. Standard action plans assume the child will notify an adult when symptoms start. They assume the child can self-administer medication with minimal supervision by middle school. They assume typical respiratory effort and...
Special Needs > Multiple Sclerosis
School Accommodations for Children with Multiple Sclerosis
Your child's MS symptoms don't stop at the...teacher moves on. These symptoms are real, measurable,...gap exists. Why MS Symptoms Often Go Unsupported...When your child's symptoms are invisible, the...is the most common symptom in pediatric MS, affecting...It's a neurological symptom that interferes with...focus. Cognitive symptoms are equally invisible....
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...faulty segment, inserts a corrected one, or turns a gene on or off. When it works, it addresses the genetic cause of a disease rather than managing symptoms. That precision is what makes it powerful for rare disorders. Many of these conditions are caused by a single mutation in a known gene. If you can...
Special Needs > Rare Disorders
Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis
...as a first-line test rather than a last resort, particularly when a child presents with developmental delays, congenital anomalies, or neurological symptoms that don't fit a recognizable pattern. What Whole Genome Sequencing Tests. WGS sequences your child's entire genome, not just the protein-coding regions...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...understand what's happening and why." By 16, the focus shifts to hands-on skills. Self-catheterization. Bowel program management. Recognizing shunt failure symptoms and knowing when to go to the ER versus when to call the...
Special Needs > Multiple Sclerosis
Living with Pediatric MS: A Complete Guide for Families
...to explain invisible symptoms to teachers who've never...to know: recognizing symptoms, understanding treatment...pattern: periods of new symptoms (relapses) followed by...Polysymptomatic onset (multiple symptoms appearing at once) More...matters. Recognizing Symptoms. MS symptoms in children...Recognizing symptoms. MS symptoms in children vary widely...
Special Needs > Diabetes
Managing Diabetes When Your Child Has Another Disability: A Dual Diagnosis Guide
...changes because communication barriers obscure symptoms and behavior changes get misread. Standard diabetes...self-reporting. The child is supposed to recognize symptoms like shakiness, sweating, confusion, and hunger,...treatment. That model assumes verbal communication, symptom awareness, and the cognitive ability to connect...
Special Needs > Attention Deficit Disorders
When ADHD Isn't Alone: Understanding Co-Occurring Anxiety, Dyslexia, and Learning Differences
...share underlying neurological pathways. ADHD and dyslexia both involve phonological processing and working memory. Anxiety and ADHD share overlapping symptoms like restlessness and difficulty concentrating. Understanding how these conditions interact changes what you ask for in evaluation and what you prioritize...
Special Needs > Attention Deficit Disorders
Why ADHD in Girls Often Goes Undiagnosed and What Parents Can Do
...found boys are diagnosed with ADHD at twice the rate of girls in childhood, and the gap isn't because girls have it less often. It's because their symptoms don't match what clinicians were trained to look for. The Diagnosis Gap Is Built Into the Evaluation. ADHD research and diagnostic criteria were developed...
Social Engagement > Discrimination
When Care Becomes Bias: Navigating Disability Discrimination in Healthcare
...of a documented pattern where disability status affects whether you receive care, how you're treated during care, and whether providers take your symptoms seriously. This article shows you how healthcare discrimination manifests, how to document it in real time, and where to file complaints that create...