Results
Medical > Cardiology
Cardiac Risks for Female Carriers of Duchenne Muscular Dystrophy
Carriers of the DMD gene can develop cardiomyopathy without any muscle symptoms. Here's the risk, the biology, and the screening you need.
Health > Alternative Medicine
CBD Safety Research for Children with Autism and Epilepsy
...from trials designed for epilepsy, not autism, which puts your child closer to the tested population than a parent asking about CBD for behavioral symptoms alone. The FDA-approved CBD medication Epidiolex was tested specifically in children with Dravet syndrome and Lennox-Gastaut syndrome, two severe,...
Lifestyle > Self-Care
Cost Barriers to Mental Health Care for People with Intellectual Disabilities
...grocery store, and has been on the waiting list for a waiver program for two years. She doesn't have six sessions worth of savings, and her anxiety symptoms are worsening. Adults with intellectual and developmental disabilities (IDD) are five times more likely to delay or forgo mental health care due to...
Career > Interviewing
Explaining Functional Limitations Without Over-Disclosing Medical Details
...doesn't require you to disclose a diagnosis, name a condition, or describe symptoms. You're only obligated to explain what you need to complete the interview...job or complete the interview. Medical descriptions focus on diagnosis, symptoms, or treatment. Both can get you the same accommodation. Only one requires...
Career > Accommodations
Accessible Restrooms and Personal Care Accommodations: Your Rights at Work
...that's accessible for your mobility device. Maybe you need privacy for medical care: managing a colostomy bag, checking blood sugar, or dealing with symptoms your coworkers don't need to know about. They're basic access, and under the ADA, your employer is required to provide them. Here's what the law requires,...
Career > Accommodations
Modified Work Schedules as a Reasonable Accommodation
...work hours that accommodates your disability. The most common types are: Flexible start and end times: arriving later or leaving earlier to manage symptoms, attend medical appointments, or work during hours when you're most functional Compressed workweeks: working four 10-hour days instead of five 8-hour...
News > Lifestyle
Teaching Life Skills for Independence: A Parent's Roadmap
...management: Reading clocks, following schedules, estimating how long tasks take. Health management: Recognizing illness, taking medication, describing symptoms, scheduling appointments. Communication and self-advocacy: Asking for help, stating preferences, understanding rights, navigating disagreements....
Special Needs > Spina Bifida
Latex Allergy in Spina Bifida: Why It Develops and How to Stay Safe
...catheterization with latex gloves, every medical supply that contains natural rubber latex adds to the body's exposure load. Some children develop symptoms after a handful of procedures. Others tolerate years of contact before their immune system crosses a threshold and starts reacting. You can't predict...
Special Needs > Spina Bifida
Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
...recognize it. Shunt failure doesn't always announce itself with the textbook symptoms you were handed at discharge. Some failures present acutely within hours....typically follows a recognizable pattern. It doesn't always start with all symptoms at once, but they tend to cluster and escalate quickly. The most common...
Special Needs > Respiratory Health
Asthma Management at School: What Parents of Children with Disabilities Need to Know
...treatments. A child with cognitive delays may not recognize early warning signs. Standard action plans assume the child will notify an adult when symptoms start. They assume the child can self-administer medication with minimal supervision by middle school. They assume typical respiratory effort and...
Special Needs > Multiple Sclerosis
School Accommodations for Children with Multiple Sclerosis
Your child's MS symptoms don't stop at the...teacher moves on. These symptoms are real, measurable,...gap exists. Why MS Symptoms Often Go Unsupported...When your child's symptoms are invisible, the...is the most common symptom in pediatric MS, affecting...It's a neurological symptom that interferes with...focus. Cognitive symptoms are equally invisible....
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...faulty segment, inserts a corrected one, or turns a gene on or off. When it works, it addresses the genetic cause of a disease rather than managing symptoms. That precision is what makes it powerful for rare disorders. Many of these conditions are caused by a single mutation in a known gene. If you can...