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Special Needs > Muscular Dystrophy
Empowering Families in the Muscular Dystrophy Journey
Understanding Muscular Dystrophy....Muscular Dystrophy. Muscular...Dystrophy. Muscular dystrophy...Muscular dystrophy is...group of genetic...types of muscular...of muscular dystrophy...muscular dystrophy that...Duchenne muscular dystrophy...muscular dystrophy Becker...Becker muscular dystrophy...muscular dystrophy Limb-girdle...Limb-girdle muscular dystrophy...muscular dystrophy Congenital...Congenital muscular dystrophy...muscular dystrophy Symptoms...dystrophy Symptoms usually...Importance of Early...signs of muscle...activity of muscles...type of muscular...of muscular dystrophy...muscular dystrophy your...with muscular dystrophy...muscular dystrophy need...team of healthcare...
Special Needs > Muscular Dystrophy
Navigating the Challenges and Triumphs of Muscular Dystrophy
...Muscular Dystrophy....Dystrophy....Muscular dystrophy...dystrophy is...of diseases...of muscular...muscular dystrophy...dystrophy with...symptoms and...muscular dystrophy...dystrophy Becker...muscular dystrophy...dystrophy Myotonic...dystrophy Limb-girdle...muscular dystrophy...dystrophy...Muscular dystrophy...dystrophy is...symptoms and...of life....Muscular dystrophy...dystrophy can...muscular dystrophy....dystrophy....muscular dystrophy...dystrophy can...of strength....muscular dystrophy...dystrophy through...of isolation....Muscular dystrophy...dystrophy affects...
Special Needs > Muscular Dystrophy
Understanding and Supporting Muscular Dystrophy
...Muscular Dystrophy?...Dystrophy?...Muscular dystrophy...dystrophy is...of diseases....of muscle...of muscular...muscular dystrophy....dystrophy....Symptoms can...of people....muscular dystrophy...dystrophy (DMD)....Symptoms usually...Muscular Dystrophy...Dystrophy Affects...of muscular...muscular dystrophy...dystrophy cause...of muscle...symptoms....Muscular dystrophy...dystrophy can...of the...muscular dystrophy...dystrophy may...of Living...Muscular Dystrophy....Dystrophy....Muscular dystrophy...dystrophy can...of muscle...Muscular dystrophy...dystrophy can...muscular...
Special Needs > Respiratory Health
Navigating Respiratory Health for Children with Special Needs
...chronic lung disease, and muscular disorders that affect...development, and quality of life. Symptoms to watch...development, and quality of life. Symptoms to watch for include coughing,...coughing, wheezing, shortness of breath, and frequent respiratory...medications to prevent symptoms Quick-relief or rescue...medications for sudden symptoms Breathing treatments or...
Special Needs > Multiple Sclerosis
MS Heroes: Dr. Jean Martin Charcot
...has heroes. I know I do. Some of mine are MS heroes. I plan,...professor at the University of Paris while working at Salpetrière...similarities among patients’ symptoms and linked them to lesions found...Guillaume Duchenne, the Father of neurology. Dr. Charcot was interested...to be Parkinson’s disease Muscular atrophy Charcot remained...
Special Needs > Spina Bifida
Latex Allergy in Spina Bifida: Why It Develops and How to Stay Safe
...explained this would become part of your routine. I've been in that...rare. It develops in 20 to 68% of children with spina bifida,...load. Some children develop symptoms after a handful of procedures....develop symptoms after a handful of procedures. Others tolerate...procedures. Others tolerate years of contact before their immune...
Special Needs > Spina Bifida
Recognizing Shunt Failure in Spina Bifida: Signs Every Parent Should Know
...you already know the weight of watching for failure. About...watching for failure. About 80-90% of children with spina bifida depend...announce itself with the textbook symptoms you were handed at discharge....doesn't always start with all symptoms at once, but they tend to cluster...relief. Your child may complain of head pain that worsens when...
Special Needs > Respiratory Health
Asthma Management at School: What Parents of Children with Disabilities Need to Know
...signs. Standard action plans assume the child will notify an adult when symptoms start. They assume the child can self-administer medication with minimal...respiratory effort and that peak flow measurements are possible. When any of those assumptions fail, the plan needs modification. The asthma itself doesn't...
Special Needs > Multiple Sclerosis
School Accommodations for Children with Multiple Sclerosis
Your child's MS symptoms don't stop at...moves on. These symptoms are real, measurable,...exists. Why MS Symptoms Often Go Unsupported...to 5 percent of all MS diagnoses,...your child's symptoms are invisible,...child is capable of what every other...most common symptom in pediatric...to 80 percent of children with...neurological symptom that interferes...focus. Cognitive symptoms are equally...
Research > Genetics
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
...off. When it works, it addresses the genetic cause of a disease rather than managing symptoms. That precision...genetic cause of a disease rather than managing symptoms. That precision is what makes it powerful for rare...what makes it powerful for rare disorders. Many of these conditions are caused by a single mutation...
Special Needs > Rare Disorders
Ending the Diagnostic Odyssey: How Whole Genome Sequencing Is Changing Rare Disease Diagnosis
...(WGS) reads all 3 billion base pairs of your child's DNA. It catches genetic...congenital anomalies, or neurological symptoms that don't fit a recognizable pattern....exome sequencing covers. About 98% of your genome doesn't code for proteins,...genetic conditions and flags variants of uncertain significance (VUS), genetic...
Special Needs > Spina Bifida
Transition to Adult Care in Spina Bifida: Why Planning Starts at 14 Not 18
...child turns 18, ages out of pediatrics, and that entire...graduation. It's the process of teaching your child to manage...learning the vocabulary of their own diagnosis. What...own diagnosis. What level of spina bifida they have....why it matters. The names of their medications and what...Recognizing shunt failure symptoms and knowing when to go to...