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Clues to Treating Cancers Found in Genomes
Research > Genetics

Clues to Treating Cancers Found in Genomes

By SpecialNeeds.com Editor
...wiTh early T-cell precursor...with early T-cell precursor...early T-cell precursor acute lymphoblastic...precursor acute lymphoblastic...precursor acute lymphoblastic leukemia had...lymphoblastic leukemia had more in...different type of leukemia than with...with other acute lymphoblastic...other acute lymphoblastic leukemias....lymphoblastic leukemias. This research...cause a normal cell to turn into...
Managing Your Child's Heart Health with Muscular Dystrophy: A Parent's Guide to Cardiomyopathy Monitoring
Medical > Cardiology

Managing Your Child's Heart Health with Muscular Dystrophy: A Parent's Guide to Cardiomyopathy Monitoring

By Andrew Donovan
...muscular dystrophy, cardiomyopathy isn't a risk you're trying to prevent. It's...dystrophin, a protein that stabilizes muscle cell membranes during contraction. Without...preserve function for years. This isn't about catching a disease that might develop....to compensate, but eventually it can't pump efficiently. In DMD, this process...
Your Employment Rights Under the ADA: A Complete Guide for People with Disabilities
Legal > Employment

Your Employment Rights Under the ADA: A Complete Guide for People with Disabilities

By Franklin Morris
...people lose rights they didn't realize they had because they...they missed a timeline, didn't know what counted as coverage,..."Substantially limits" doesn't mean you can't do the activity...limits" doesn't mean you can't do the activity at all. It means...like immune system function, cell growth, and neurological function....
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
Special Needs > Epilepsy

A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients

By Emily Thompson
...time to see. What NRTX-1001 is doing The treatment uses a specific type of cell called interneurons, inhibitory nerve cells that produce GABA, the neurotransmitter...function that's missing. What makes this approach different from surgery isn't just the mechanism. It's what it opens up. Traditional resective surgery requires...
Medicaid's 'Medically Frail' Exemption Is Still Undefined. Here's How to Protect Your Coverage Before CMS Draws the Line on June 1.
Legal > Government Benefits

Medicaid's 'Medically Frail' Exemption Is Still Undefined. Here's How to Protect Your Coverage Before CMS Draws the Line on June 1.

By James Williams
...now, patient advocacy groups for sickle cell disease, HIV, and other chronic conditions...member with a chronic condition that isn't covered by the statutory exemption list,...is that "medically frail" itself isn't fully defined in statute. CMS has discretion...the "disabled" category. If they don't receive...
Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.
News > Advocacy

Trump Just Signed 100% Tariffs on Brand-Name Drugs. What Disability Families Need to Know About Their Medications.

By Henry Peterson
...200,000 people) Nuclear medicines Plasma-derived therapies Fertility treatments Cell and gene therapies Antibody drug conjugates Medical countermeasures for chemical,...January 20, 2029. What's not exempt: patented brand-name medications that don't fall into the categories above. This includes many medications commonly prescribed...
Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.
News > Advocacy

Colorado Is Halving Paid Family Caregiver Hours. Ohio and Pennsylvania Are Next. What Families on Medicaid Waivers Need to Do Now.

By Amelia Harper
...exact timeline for caregiver hour reductions. Ohio and Pennsylvania have signaled similar cuts are coming by mid-2026. Indiana is following. This isn't a local budget problem. It's the result of the federal Medicaid cuts in HR 1, the "One Big Beautiful Bill Act," which reduced federal funding for Medicaid...
Group Home Rights Under the Fair Housing Act
Legal > Housing

Group Home Rights Under the Fair Housing Act

By Henry Bennett
...housing based on disability. For group homes, this means local governments can't use zoning laws to exclude homes serving people with disabilities from residential...discrimination. If neighbors petition to block a group home because they don't want "those people" in the neighborhood, the FHA says no. The law applies to...
Moving from a Nursing Home to Community Housing Under Olmstead
Legal > Housing

Moving from a Nursing Home to Community Housing Under Olmstead

By Henry Bennett
...of reach in practice. Federal law guarantees the right to live in the most integrated setting appropriate to individual needs, yet families often don't know these rights exist or how to exercise them. The Olmstead decision and programs like Money Follows the Person provide pathways out of institutional...
Understanding SSI Resource Limits and What Assets Count
Legal > Government Benefits

Understanding SSI Resource Limits and What Assets Count

By James Williams
...for a couple). But the calculation isn't straightforward because not everything...counts as a resource. Your house doesn't. Your car might not. An ABLE account...ABLE account with $80,000 in it doesn't count at all. Here's what counts, what...at all. Here's what counts, what doesn't, and how ABLE accounts change the math...
What to Do If Your Child's Disability Benefits Are Denied
Legal > Government Benefits

What to Do If Your Child's Disability Benefits Are Denied

By James Williams
...applications. At age 18, when childhood SSI recipients are reevaluated under adult disability standards, 55.7% are initially found ineligible. That doesn't mean the case is over. It means you're entering the appeals process, which has four levels and specific deadlines at each one. The 60-Day Deadline. You...
When Your Child with Disabilities Can Work While Receiving SSI
Legal > Government Benefits

When Your Child with Disabilities Can Work While Receiving SSI

By James Williams
...against the child's SSI eligibility. Parental deeming ends the month the child turns 18, which often makes adults eligible for SSI even if they weren't as children. Once a child turns 18, SSA applies adult work incentive rules. The most relevant for young adults still in school is the Student Earned Income...

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