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Special Needs > Muscular Dystrophy
Empowering Families in the Muscular Dystrophy Journey
Understanding Muscular Dystrophy....Muscular Dystrophy. Muscular...Dystrophy. Muscular dystrophy...Muscular dystrophy is...of muscular dystrophy...muscular dystrophy that...Duchenne muscular dystrophy...muscular dystrophy Becker...Becker muscular dystrophy...muscular dystrophy Limb-girdle...Limb-girdle muscular dystrophy...muscular dystrophy Congenital...Congenital muscular dystrophy...muscular dystrophy Symptoms...and therapies right...check for genetic...of muscular dystrophy...muscular dystrophy your...just for them....with muscular dystrophy...muscular dystrophy need...Physical therapist to...Occupational therapist to...Respiratory therapist to...
Special Needs > Muscular Dystrophy
Understanding and Supporting Muscular Dystrophy
...is Muscular Dystrophy?...Muscular Dystrophy?...Dystrophy? Muscular dystrophy...Muscular dystrophy is...of muscular dystrophy....muscular dystrophy....Duchenne muscular dystrophy...muscular dystrophy (DMD)....How Muscular Dystrophy...Muscular Dystrophy Affects...of muscular dystrophy...muscular dystrophy cause...symptoms. Muscular dystrophy...Muscular dystrophy can...Muscles for moving,...Muscles for breathing...Muscles for speaking...with muscular dystrophy...muscular dystrophy may...with Muscular Dystrophy....Muscular Dystrophy....Dystrophy. Muscular dystrophy...Muscular dystrophy can...caregivers. Muscular dystrophy...Muscular dystrophy can...a therapist can...and Therapies....cure for muscular...for muscular...
Therapies > Physical
Aquatic Therapy for Special Needs Children: Benefits and What to Expect
Your child's physical therapist recommends aquatic...particularly effective for children with cerebral...autism, spina bifida, muscular dystrophy, and neurological...spina bifida, muscular dystrophy, and neurological conditions...affecting movement. For some families, it becomes...primary PT modality. For others, it's a supplement...without compensating for balance difficulties...
Lifestyle > Independence
Assistive Technology for Eating Independence
...another way. Occupational therapists recommend adaptive feeding...Children with cerebral palsy, muscular dystrophy, low muscle tone,...with cerebral palsy, muscular dystrophy, low muscle tone, stroke recovery,...provide proprioceptive feedback for children with shaky hands or...handles make gripping easier for children with weak hand strength...
Special Needs > Muscular Dystrophy
The Wheelchair Transition in Muscular Dystrophy: Preparing Your Child Emotionally and Practically
Your child's physical therapist mentioned it at the last...you know what's coming. For children with Duchenne...children with Duchenne muscular dystrophy, the transition...with Duchenne muscular dystrophy, the transition to full-time...gradual, and can be prepared for in ways that make the...frightening and more empowering for everyone. The conversation...
Health > Exercise
Swimming and Aquatic Therapy: Why Water Works for Children with Special Needs
...negotiation entirely. For children with...benefit. Physical therapists, occupational...occupational therapists, and pediatricians...aquatic therapy for children with...spectrum disorder, muscular dystrophy, spina...disorder, muscular dystrophy, spina bifida,...to 90 percent. For a child whose...to them. The therapist will build on...on it later. For now, it's theirs....
Assistive Tech > Mobility
Pediatric Wheelchairs: Manual vs. Power and When Kids Are Ready
When a physical therapist first recommends...power wheelchair for a toddler, most...to wait. The therapist sees candidacy...physical efFort. For children with...palsy, spinal muscular atrophy, or...atrophy, or muscular dystrophy, that...or muscular dystrophy, that difference...unavailable for learning, communicating,...has less left for everything the...Is Too Young for...
Financial > Financial Planning
Medicaid Estate Recovery and Special Needs Trusts
...what the trust can pay for during the beneficiary's...beneficiary's lifetime: therapies, education, recreation,...recoup costs they paid for long-term care and services....services at any age. For individuals with disabilities...relied on Medicaid for decades, the estate...to repay the state for Medicaid benefits paid...trust can be invalid for Medicaid eligibility...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
...developed by Grace Science for NGLY1 Deficiency. The designation...skills in patients treated for at least 52 weeks. For...For at least 52 weeks. For families of children with...of regenerative medicine therapies that show preliminary clinical...life-threatening diseases. For families, this means three...benefit, GS-100 may qualify for accelerated approval based...
Therapies > Animal
Service Dog, Therapy Dog, or Emotional Support Animal: Which Is Right for Your Child?
You're researching animal support options for your child, and the terms keep overlapping:...legal protection. Families pay thousands for "ESA certifications" that have zero...individually trained to perform specific tasks for a person with a disability. Under the...handler's disability. Common tasks for children with disabilities: Deep pressure...
Education > Early Intervention
Understanding Early Intervention Therapies: Speech, Occupational, and Physical Therapy for Infants and Toddlers
...child's IFSP lists three therapies: speech, occupational,...physical. You've got therapists coming to your home twice...obvious at first. A speech therapist might work on feeding....feeding. An occupational therapist might focus on play....on play. A physical therapist might spend most of the...together, and what to look for during sessions so you...
Therapies > Physical
Your Child's PT Home Exercise Program: How to Practice Between Sessions and See Results
Your child's physical therapist hands you a packet of exercises at...home between appointments. But the therapist made it look easy, and your child...so at the next session. Ask your therapist to provide: Step-by-step instructions...their hips as they reach forward for a toy placed two feet ahead." That...