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When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs
Medical > Pediatrics

When Your Pediatrician Isn't Enough: Building a Medical Home for Complex Needs

By Dr. Opal Stenson
Your child sees a...sees a pulmonologist,...pulmonologist, a gastroenterologist,...gastroenterologist, a neurologist,...neurologist, and a developmental...office. But when you call...with a question...down. A medical...what a medical...makes a measurable...What a Medical...Home Does. The American...defines a medical...your child's entire...plAn. A medical...Your child's medical...specialties. When the pulmonologist...recommends a new breathing...your child's feeding...child's feeding schedule,...those who need care from...
Related Services in Special Education: A Complete Guide to OT, PT, Speech, and More
Education > Special Education

Related Services in Special Education: A Complete Guide to OT, PT, Speech, and More

By Isabella Johnson
...that help a child...help a child with a...child with a disability...means when they're...in your child's IEP,...notice a difference...articulation, feeding, and social...governed by a specific...to help a child...help a child with a...child with a disability...doing a lot of...access: what does your child...does your child need in...child need in order...transportation when a disability...transportation when a disability...affects how a child...how a child can get...
The Challenges Of Parenting A Child With Williams Syndrome
Special Needs > General Special Needs

The Challenges Of Parenting A Child With Williams Syndrome

By SpecialNeeds.com Editor
A Diagnosis...What Does It Mean...For My Child? When...Child? When your...your child is diagnosed...can be a lot...the child you...your child is still...still need your...parenting a child...parenting a child with...your child needs....also need to provide...your child and...may be feeling. It...your child. This...they need and...can be a lot...worth it when you...your child thriving....syndrome is a developmental...aspects of a person's...parenting a child...parenting a child with...
A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships
Social Engagement > Dating and Relationships

A Parent's Guide to Supporting Your Teen with Special Needs in Their First Relationships

By Isabella Lewis
...structure they need to navigate...internet had a forum for...one rarely does. Teaching...this has a template,...and they need repetition...teaching consent when your 15-year-old...body parts when your child...when your child is young....gives your child the language...someone crosses a boundary....boundAry. A child who...boundary. A child who knows...understood. A child who...understood. A child who only...
CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know
Research > Genetics

CRISPR Gene Therapy for Rare Pediatric Disorders: What Families Need to Know

By Aiden Moore
...February 2025, a medical...deficiency, a rare metabolic...for that child's genetic...scratch as a one-time...everyone asks: does this apply...apply to my child? The short...CRISPR Does and What...CRISPR is a gene editing...DNa at a specific...removes a faulty segment,...inserts a corrected...or turns a gene on...or off. When it works,...cause of a disease...caused by a single mutation...mutation in a known gene....effective when the genetic...
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
Research > Drug Development

Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework

By Dr. Jenna Collins
Your child's specialist...mentioned a clinical...about a study...for your child's condition....You've got a packet...information, a consent...long, and a decision...obvious when you're...enroll your child in research...understand, for a drug that...predict. You need a framework:...You need a framework:...framework: not a sales...pitch, not a fear campaign,...campaign, but a structured...and What Does That Mean?...answers a different...looking for a signal...the drug does what it's...across a bigger,...
Housing Options for Adults with Disabilities: From Supported Living to Independence
Parenting > Adulthood

Housing Options for Adults with Disabilities: From Supported Living to Independence

By Nora Bloom
...at your adult child and asking yourself...asking yourself when the housing conversation...us or move to a group home. The...depends on your child's support needs,...different people need different things,...question is: what does your child need...what does your child need to live safely...does your child need to live safely...behaviors that need trained staff intervention,...
Physical Therapy for Children with Special Needs: A Complete Parent's Guide
Therapies > Physical

Physical Therapy for Children with Special Needs: A Complete Parent's Guide

By Grace Lewis
...Your school-age child trips constantly...are the moments when parents wonder: does...parents wonder: does my child need physical...wonder: does my child need physical therapy?...wonder: does my child need physical therapy?...safely, sit upright at a desk, play on the...to know if your child needs it, what happens...and how to find a qualified therapist...
School Seizure Action Plans: What Every Parent and Teacher Needs to Know
Special Needs > Epilepsy

School Seizure Action Plans: What Every Parent and Teacher Needs to Know

By Emily Thompson
Your child has epilepsy....But when your...your child has a...has a seizure...your child's seizures...your child's specific...pAttern. A Seizure...Plan does. A Seizure...does. A Seizure...(SaP) is a one-page...to do when your...your child has a...has a seizure....your child, when...child, when to administer...and when to call...What a Seizure...ContAins. A school...your child and should...Your child's seizure...long does the seizure...Staff need to know...your child's baseline...recognize when something...
Respiratory Health for Children with Disabilities: A Complete Family Guide
Special Needs > Respiratory Health

Respiratory Health for Children with Disabilities: A Complete Family Guide

By Samantha Kay
When your child... When your child has both...has both a disability...disability and a respiratory...interAct. A child with...interact. A child with cerebral...doesn't just need an inhaler....inhaler. They need a care...They need a care plan...Airways. A ventilator-dependent...ventilator-dependent child with a...child with a developmental...needs a school...build a care team...than it does in typically...children. A child with...children. A child with limited...pAtterns. A child with...patterns. A child with low...
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
Special Needs > Epilepsy

Seizure First Aid: A Step-by-Step Guide for Families and Caregivers

By Emily Thompson
A teacher...watches a student...knows the child has epilepsy....threshold for when to act....If you're a teacher,...cares for a child with...cares for a child with epilepsy,...what you need to know...conversation you need to have...what to do when the moment...Has your child had a seizure...child had a seizure...recently? What does it look...like the child has briefly...room, with a blank stare,...
AAC for Children with Cerebral Palsy: Finding the Right Communication System
Special Needs > Cerebral Palsy

AAC for Children with Cerebral Palsy: Finding the Right Communication System

By Dr. Harper Clark
Your child has some...needs. When the therapist...Won't a device...reflects a fear many...built on a misunderstanding...what AAC does. Augmentative...Still Need AAC. The...children who need AAC have...speech. When a child...When a child...When a child has a...child has a few words...just need to work...environments, when the child...when the child is tired,...tired, or when motor...gAps. A child...gaps. A child can use...voice when it works...device when it doesn't....

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