Results
Special Needs > Cerebral Palsy
Hip Surveillance for Children with Cerebral Palsy: A Parent's Guide to the Monitoring Schedule
...schedule for their hips...their child is already...problem on an X-ray. But...on an X-ray. But the...exists for a reason:...higher risk for hip displacement...surveillance is, why it...Surveillance Is. Hip surveillance...surveillance is a proactive...scheduled X-rays to...scheduled X-rays to track...hip joint is staying...detection. The X-rays measure...detection. The X-rays measure...joint) is sitting...under 30% is generally...a child is in pain...window for less invasive...
Medical > Orthopedics
Hip Surveillance in Cerebral Palsy: When Monitoring Becomes Surgery
...always hear is what they're...they're watching for, or what number...number on an x-ray report...number on an x-ray report turns...displacement is progressive...time a child is uncomfortable,...schedule of x-rays tied to...schedule of x-rays tied to your...crisis. This is the framework...orthopedist is using. Here's...less stimulus for the socket...surveillance. GMFCS III is lower but still...
Assistive Tech > Apps
Special Needs App of the Day: X is for X-Ray
...work, and X is for...and X is for X-Ray...X is for X-Ray...is for X-Ray shows...for X-Ray shows...giving you X-ray vision....you X-ray vision....intrigue is suitable...suitable for many...teXt. X is for...X is for X-Ray...X is for X-Ray...is for X-Ray by...for X-Ray by Touch...objects, one for each...zoom for a closer...object. X is for...object. X is for X-Ray...X is for X-Ray...is for X-Ray features...for X-Ray features...text is shown...picture is on the...narration. For anyone...
Research > Funding
Private Foundations Funding Disability Research: A Guide for Advocates and Families
...That's critical infrastructure. For families navigating cerebral...navigating cerebral palsy, fragile X syndrome, or rare genetic conditions,...overlooks disability funding for identifiable reasons. Program...oncology trials. The result is a funding ecosystem where federal...Foundation SFARI remains the anchor for autism research. Their grants...
Research > Drug Development
Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families
...been following Fragile X drug research for any...Fragile X drug research for any length of time,...announcements. Which is exactly why Zatolmilast...results in a Phase 2 trial for Fragile X syndrome....2 trial for Fragile X syndrome. Not marginal....2024, a status reserved for drugs addressing serious...sense on paper. Fragile X syndrome results from...
News > Advocacy
The R-Word Spiked 200% Online. A Disney Actor With Down Syndrome Made a 91-Second Response Parents Need to See.
...surged 207.5% on X in November 2025....91-second video for World Down Syndrome...role. The video is now viral. Over...91-second case for retiring the R-word...Well, the r-word is harmful to us."...us." The campaign is called "Just Evolve."...Evolve." The tagline is direct and the execution...Matthews Matofsky Is. Noah is a British...Matofsky is. Noah is a British actor...
Career > Advancement
Negotiating Salary and Benefits: What to Say When Employers Bring Up Accommodation Costs
...interviews. An offer is coming, or a promotion...promotion conversation is on the table. Then...cost. This moment is disorienting, and...Cannot Do. The ADA is specific about this:...decisions. Compensation is determined by the...accommodations is not yours to absorb...want to offer you X, but your accommodations...will cost us Y" is conflating two things...not a valid basis for the offer, and you...
Research > Funding
Investing in the Future of Special Needs Research and Innovation
...needs research is crucial for improving...research is crucial for improving the lives...families. Funding for this research helps...best practices for managing their...streams are essential for long-term research...makes a big impact is in the development...controlled computers for people with limited...and interventions for conditions like...conditions like fragile X syndrome, Down...
Special Needs > Autism Spectrum
Ask the Development Doc: Play Dates for Autism
...Neuro-Typical Play Dates for Children with Autism...Do you have any ideas for helping my autistic child...them. I asked her teacher for help and she suggested that...Sara: Play dates, up to 3 X a week, with typical developing...critical intervention strategy for children impacted with autism....poor motor planning. This is where children literally...
Parenting > The Early Years
The Journey of the Parent with a Special Needs Child
...special needs. This is a journey, and there...to 'go there.' This is why you may seek the...another person, that this is not what you planned...not what you planned for, this is not how you...you planned for, this is not how you wanted motherhood/fatherhood...motherhood/fatherhood to be, that is not what you wanted....to feel that the last X years are unfair to...
Therapies > Animal
Canine Companions Provide Four-Legged Friends
...Canine Companions for Independence is a...for Independence is a national nonprofit...provides assistance dogs for people with disabilities...children's assistance dogs for the social, developmental...encouraging interaction for children who may have...man with Fragile X Syndrome, explains,...Dayna, whose child is dually diagnosed with...create opportunities for children to work on...
Assistive Tech > Apps
Special Needs App of the Day: iBioMed
...and seizures who were looking for a way to make their lives easier,...multiple sclerosis, autism, Fragile X syndrome, cerebral palsy, and...at the same time. Health data is fully encrypted and stored on...a standalone app. Available for free on iPad, iPhone, and iPod...iPad, iPhone, and iPod touch. For more information, go here.