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Special Needs > Epilepsy
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
...seizures are medication resistant. You've tried three anticonvulsants....that's been used for drug-resistant epilepsy since...that's been used for drug-resistant epilepsy since the 1920s....used for drug-resistant epilepsy since the 1920s. About...percent of children with epilepsy don't respond adequately...Atkins diets for childhood epilepsy, including how they work,...
Special Needs > Epilepsy
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
For families managing drug-resistant epilepsy, the standard... For families managing drug-resistant epilepsy, the standard list...families managing drug-resistant epilepsy, the standard list of options...drawing real attention from the epilepsy research community. Early...with bilateral temporal lobe epilepsy, where seizures originate...
Career > Finding Jobs
Work Incentives Planning and Assistance: Benefits Counseling Before Returning to Work
...people who receive SSI or SSDI, that question isn't hypothetical worry. Your monthly cash benefit, your Medicaid or Medicare coverage, your prescription drug access: all of it runs through formulas that change when you earn wages. Get the calculation wrong and you can lose coverage you depend on, sometimes...
News > Research
The FDA Just Gave a Rare Pediatric Gene Therapy Its Fastest Regulatory Track. Here's What Families of Children with NGLY1 Deficiency Need to Know.
The U.S. Food and Drug Administration granted Regenerative Medicine Advanced Therapy (RMAT) designation to GS-100 on April 14, 2026, an investigational gene therapy developed...
Research > Drug Development
Should Your Child Participate in a Clinical Trial? A Parent's Decision Framework
...don't fully understand, for a drug that may or may not work, with...side effects, and whether the drug is tolerated. This is the highest-risk...the highest-risk phase. The drug may not work at all; safety...looking for a signal that the drug does what it's supposed to do....3,000 participants or more. The drug has shown promise in earlier...
Research > Drug Development
Fragile X Drug Trials: The First Real Breakthroughs and What They Mean for Families
If you've been following Fragile X drug research for any length of time, you've probably learned to hold good news...it carefully rather than cautiously. In 2024, Zatolmilast became the first drug to produce unequivocally positive results in a Phase 2 trial for Fragile...
Research > Drug Development
The Drug Development Pipeline for Special Needs: What Parents Need to Know About How Treatments Go from Lab to FDA Approval
...headline about a promising autism drug entering Phase 2 trials, and...market. Understanding where a drug sits in the development pipeline...specific question about whether a drug is safe enough and effective...Human Testing Begins. Before a drug is tested in people, it goes...file an Investigational New Drug (IND) application, which is...
Health > Treatment
Managing Multiple Medications for Children with Medical Complexity: A Parent's Safety Guide
...question no one else is tracking: do all of these still make sense together? Children with medical complexity face a five times higher risk of adverse drug events than children on single medications. Over 30% of medication errors happen at home, not in hospitals. The system assumes someone is watching the...
Health > Alternative Medicine
CBD for Children with Special Needs: Separating Marketing from Medicine
...The FDA has approved exactly one CBD medication: Epidiolex, a prescription drug used to treat seizures in Dravet syndrome and Lennox-Gastaut syndrome, two...seizures in Dravet syndrome and Lennox-Gastaut syndrome, two rare forms of epilepsy. Epidiolex is pharmaceutical-grade, meaning every dose contains a precise...
Research > Funding
Investing in the Future of Special Needs Research and Innovation
...translates into better ways to diagnose, treat, and manage these conditions. Breakthroughs in genetics, neuroscience, and other fields have led to targeted drug therapies and interventions for conditions like fragile X syndrome, Down syndrome, and autism spectrum disorder. More research...
Research > Drug Development
Unveiling Breakthroughs in Muscular Dystrophy Treatment
...New drugs Are Developed. Making a new drug is a long process. It can take 10-15...Next, they make and test different drug compounds. The most promising ones move...ones move on to animal testing. If a drug seems safe and effective, it can be...check the safety and benefits of the drug. The FDA looks at all the data before...
Lifestyle > Recreation
The Perfect Boss on Lifetime Movie Network
...to fast track their new drug through FDA approval. This...through FDA approval. This drug will save the company from...Jessica's attention that the drug is responsible for people...negativities about the miracle drug. The deadly side effects...trials on this new wonder drug. Dr. Renfro (Gary Hudson)...the problems with the new drug at Mickelson pharmaceuticals....