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Research > Clinical Trials
Why Children with Disabilities Are Underrepresented in Clinical Trials
...population it's meant to serve, and treatments that work less effectively in real-world...A child with autism who also has epilepsy. A child with cerebral palsy who...follow the same pattern. By the time a treatment reaches approval, it has been tested...will use it. That's why FDA-approved treatments sometimes work differently in...
Special Needs > Epilepsy
A New Epilepsy Treatment Reports Over 90% Seizure Reduction in Initial Patients
...families managing drug-resistant epilepsy, the standard list of options is...is drawing real attention from the epilepsy research community. Early data is...see. What NRTX-1001 is doing The treatment uses a specific type of cell called...people with bilateral temporal lobe epilepsy, where seizures originate in both...
Assistive Tech > Apps
Special Needs App of the Day – Seizure Tracker
This review is courtesy of Wynsum Arts' Every App Has a Story , the stories behind Wynsum Arts' distinguished apps. "In the epilepsy world, quality of data drives quality of life." –Robert Moss, creator of Seizure Tracker Seizure Tracker Robert and Lisa Moss began tracking...
Special Needs > Epilepsy
Preventing Autism from Epilepsy
...suggests that around 40 percent of all children with autism also have epilepsy. This finding proposes that the two are linked, and a study published from...seizure-induced changes in the brain. By blocking the mTOR pathway, the treatment prevents seizures and autism later in life, as suggested by this study....
Health > Treatment
A Discussion of Neurofeedback
...clinical director of the EEG Institute in Woodland Hills, California. She and her husband became interested in the area when their son was diagnosed with epilepsy. They found that medications managed his seizures, but his behavior was still out of control. However, through Neurofeedback, they found the technique...
Special Needs > Epilepsy
School Seizure Action Plans: What Every Parent and Teacher Needs to Know
Your child has epilepsy. The school knows this because you wrote it on the enrollment forms. But when your child has a seizure in the cafeteria, the teacher supervising lunch...
Special Needs > Epilepsy
Dietary Therapy for Epilepsy: A Parent's Guide to Ketogenic and Modified Atkins Diets
...intervention that's been used for drug-resistant epilepsy since the 1920s. About 20 to 30 percent of children...1920s. About 20 to 30 percent of children with epilepsy don't respond adequately to medications. For many...ketogenic and modified Atkins diets for childhood epilepsy, including how they work, what the research shows,...
Special Needs > Epilepsy
Seizure First Aid: A Step-by-Step Guide for Families and Caregivers
...repetitive movements. The teacher has read the file. She knows the child has epilepsy. What she doesn't know is whether this is the seizure type that requires...babysitter, camp counselor, or family member who cares for a child with epilepsy, this is what you need to know before you're alone with them for the first...
News > Advocacy
How to Request Workplace Accommodations Under the ADA Without Risking Your Job
...hearing, speaking, breathing, learning, concentrating, and working. The definition is broad. It covers conditions that are episodic or in remission, like epilepsy, bipolar disorder, or cancer. You don't need a formal diagnosis to be covered. You need a condition that...
Health > Alternative Medicine
CBD for Children with Special Needs: Separating Marketing from Medicine
...exactly one CBD medication: Epidiolex, a prescription drug used to treat seizures in Dravet syndrome and Lennox-Gastaut syndrome, two rare forms of epilepsy. Epidiolex is pharmaceutical-grade, meaning every dose contains a precise amount of CBD, verified through rigorous testing. The CBD oils, gummies,...
Special Needs > Epilepsy
Seizure First Aid: What to Do, What Not to Do, and When to Call 911
When a child has their first seizure, parents describe time moving strangely. The instinct is to do something, to intervene, to stop what is happening. That instinct is understandable and sometimes makes things worse. Seizure first aid is not complicated. The steps are short. What makes them hard is...
Special Needs > Epilepsy
Managing Epilepsy for Optimal Learning in the Classroom
...Challenge of Epilepsy in the Classroom....student with epilepsy, facing not only...for managing epilepsy in the classroom,...Understanding Epilepsy and Its Impact....Its Impact. Epilepsy is a neurological...12-year-old with epilepsy. Her seizures,...learn about epilepsy and its effects,...students about epilepsy, challenging...students with epilepsy to share their...