What is Spina Bifida?

Spina bifida is a birth defect that affects the spine and spinal cord. It happens when the spinal column does not close all the way during the first months of pregnancy.

There are three main types of spina bifida:

• Myelomeningocele - the most severe form where the spinal canal is open along several vertebrae
• Meningocele - the protective membranes around the spinal cord push out through an opening in the vertebrae
• Spina bifida occulta - a small gap in the spine, but no opening or sac on the back

Doctors aren't sure exactly what causes spina bifida. They think genes and the environment play a role. Getting enough folic acid before and during early pregnancy can help prevent spina bifida.

Living with Spina Bifida

Many people with spina bifida live full, active lives. Mobility aids like braces, crutches, or wheelchairs can help with walking. Physical therapy builds strength and coordination.

Bladder and bowel problems are common in people with spina bifida. Catheters can help empty the bladder. Fiber in the diet and regular toilet routines promote bowel control.

Some people with spina bifida have hydrocephalus, a buildup of fluid in the brain. A hollow tube called a shunt drains the extra fluid. This prevents brain damage. Shunts need lifelong monitoring and sometimes replacement.

Staying Healthy

People with spina bifida need regular checkups to stay healthy. This includes seeing specialists for the brain, bones, bladder, and more.

Preventing latex allergy is important. Many medical items have latex. Repeated exposure can trigger an allergic reaction. Telling doctors and dentists about a latex allergy is a must.

Skin care also matters. Doing daily skin checks catches sores or pressure spots early. Using seat cushions prevents sores. Treating sores right away helps them heal.

Emotional Health

Living with spina bifida impacts emotional health too. Feeling sad, angry, or alone is normal. Talking to loved ones helps during tough times.

Counseling gives people a safe space to share feelings. Mental health professionals teach coping skills. They help build resilience and self-esteem.

Connecting with others who have spina bifida makes a big difference. Support groups offer friendship and advice. Sharing joys and challenges boosts emotional health.

Achieving Goals and Dreams

People with spina bifida can achieve their goals and dreams. School and work accommodations create equal opportunities. Assistive technology and tools make tasks easier.

Trying new things builds confidence. Adapted sports and hobbies are great ways to stay active. Art and music inspire creativity.

Focusing on strengths is key. Everyone has unique gifts to share with the world. Chasing passions gives life meaning and joy.

A Bright Future

Spina bifida is a lifelong condition. But it doesn't define a person. With support, people with spina bifida thrive.

New treatments bring hope for the future. Research looks for ways to prevent and treat spina bifida. Someday there may be a cure.

For now, people with spina bifida are living life to the fullest. They are students, employees, artists, athletes, and more. They are moms, dads, friends, and neighbors. Most of all, they are resilient. They are strong. They are triumphant.