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Special Needs > Respiratory Health
Respiratory Health for Children with Disabilities: A Complete Family Guide
...with cerebral palsy and asthma doesn't just need an inhaler. They need a care plan that accounts for muscle tone, positioning, and coordination challenges...with special needs, how to manage them in daily life, and how to build a care team that works together instead of in silos. Understanding the Most Common...
Research > Funding
Where Research Dollars Go: Understanding Funding Gaps Across Disability Conditions
...Funding. The National Institutes of Health distributes roughly $47 billion annually...institutional capacity. Larger patient advocacy organizations generate political pressure,...that correlates more closely with advocacy infrastructure than medical need....outcomes. For families planning long-term care into adulthood, that 2.3% represents...
Health > Treatment
What to Do If Your Child Is on a Medicaid Waiver Waiting List
...disabilities to receive care at home or in the community...typically include personal care, respite care, case management,...personal care, respite care, case management, home...therapies. Unlike nursing home care, which Medicaid is required...Zoe Gross, Director of Advocacy at the Autistic Self Advocacy...Advocacy at the Autistic Self Advocacy Network, explained it...
Global Insights > Healthcare
Healthcare for Individuals with Special Needs: A Global Perspective
Healthcare for Individuals...quality healthcare services...lead a healthy and fulfilling...circumstances. Healthcare Access...quality healthcare. In many...specialized healthcare services...to find healthcare providers...improve healthcare access...training for healthcare professionals,...dedicated healthcare facilities,...access to care. Telemedicine...mobile health services...receive the care they need....addition to healthcare, individuals...
Special Needs > Respiratory Health
Empowering Individuals with Disabilities: The Cornerstone of Respiratory Transition Planning
...smaller dogs can be just as loving and devoted. They are also easier to take care of, which can be a big plus for busy people. Ultimately, the best dog for...rescue organization. Understanding Disability and Its Impact on Respiratory Health. A long time ago, in a galaxy far, far away, there lived a young Jedi named...
Legal > Advocacy
Guardianship and Developmental Disabilities
...Since Susie is high-functioning, she can sign a power of attorney and a health care proxy designating her parents as agents to make legal, financial, and...Susie is high-functioning, she can sign a power of attorney and a health care proxy designating her parents as agents to make legal, financial, and residential...
Health > Treatment
Transitioning to Adult Healthcare: Preparing Your Young Adult with Special Needs for the Move
...begin. The transition from pediatric to adult healthcare is a documented gap. Here's the practical roadmap:...who will take your call. Start at 14: Build Self-Advocacy Skills Before You Need Them. The work of transition...skills your young adult will need to navigate adult care with or without support. Can your child explain...
News > Advocacy
Self-Advocacy for Adults with Disabilities: How to Speak Up in Medical Work and Daily Life
Self-advocacy is the skill of communicating your needs, making...matter most. Know What You're Entitled To. Self-advocacy starts with understanding your legal rights. You...federal funding, including most schools and many healthcare providers. Those aren't suggestions. They're laws...
Global Insights > Education
International Angelman Day: A Global Movement for Change
...Day serves as a catalyst for fostering collaboration among researchers, healthcare professionals, and advocacy organizations. By fostering a network of expertise...fostering collaboration among researchers, healthcare professionals, and advocacy organizations. By fostering a network of expertise and knowledge sharing,...
Special Needs > Cystic Fibrosis
The CF Transition to Adult Care: How to Prepare Your Teen for Independent Health Management
Your teen's CF care has been coordinated...transition to adult CF care is a documented...have to derail care. Parents who start...extend pediatric care to 21 if the adult...directly with the care team. What Changes...Changes in Adult CF Care. Pediatric CF care...care. Pediatric CF care is family-centered....clinic. Adult CF care assumes the patient...manages their own care. Your presence...
Health > Treatment
Getting Your Child to Take Medicine: Evidence-Based Strategies That Actually Work
...aren't small. Research shows that over 30% of medication errors in pediatric care occur at home, often because doses are missed, spit out, or refused entirely....child can't or won't take their medication, you're managing a gap in their care, not just a difficult moment. This guide covers evidence-based strategies...
Global Insights > Healthcare
Medicaid for Working Families: Katie Beckett Waivers, Dual Coverage, and Options You Didn't Know Existed
...and still can't afford the care your child needs. This is the...three children with special health care needs, according to KFF....children with special health care needs, according to KFF. But...child who needed hospital-level care but could be treated at home....would require institutional care without home-based support,...