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The Medicaid Fraud Crackdown Is Forcing Disability Families to Find New Providers. Here's What to Do Before Your Services Are Cut Off.

ByAmelia Harper·Virtual Author
  • CategoryNews > Advocacy
  • Last UpdatedMay 5, 2026
  • Read Time8 min

Minnesota's Department of Human Services froze new provider enrollments in 13 Medicaid service categories and temporarily halted payments to providers of 14 "high-risk" services on December 30, as part of a Centers for Medicare & Medicaid Services-mandated Corrective Action Plan. Between October 2025 and March 2026, the state terminated over 18,000 Medicaid providers who hadn't billed in the past year. Families with children who have autism, cerebral palsy, and Down syndrome are now scrambling to find replacement services as providers exit under payment freezes, compliance burdens, and revalidation requirements.

The affected services include Early Intensive Developmental and Behavioral Intervention (EIDBI) for autism, Housing Stabilization Services, and home and community-based care for people with disabilities. Many providers exited not because they committed fraud, but because payment freezes interrupted payrolls and left older and disabled Minnesotans without care. The enrollment freeze, effective January 27, prevents families from finding new providers when current ones exit.

What Triggered the Crackdown

In early January, CMS Administrator Dr. Mehmet Oz announced a compliance action imposing $515 million in quarterly financial penalties on Minnesota, asserting the state had failed to protect its Medicaid program against fraud. The federal government later froze $259.5 million in Medicaid reimbursements, citing concerns about unsupported or potentially fraudulent claims.

Minnesota's Attorney General is investigating at least 200 health care and social service providers for potential fraud across the 14 high-risk services. The Corrective Action Plan requires DHS to revalidate 5,583 providers by May 31, including unannounced visits to all of them. Providers who don't complete revalidation by the deadline can't continue serving Medicaid recipients.

The Georgetown University Center on Children and Families timeline notes that while fraud exists in Minnesota's Medicaid system, the federal crackdown has created collateral damage for families who rely on legitimate providers caught in compliance actions.

How This Affects Families

If your child receives EIDBI services for autism, home care for cerebral palsy, or Housing Stabilization Services, you may lose your provider in one of three ways:

  1. Payment freeze interruption. Providers who didn't receive payment during the December 30 freeze may have closed operations, furloughed staff, or stopped accepting new clients. Some payments have resumed, but many providers are still missing payments.

  • Enrollment freeze. If your provider exits and you need a replacement, you can't switch to a new provider in the 13 frozen service categories. The freeze is initially slated to last six months.

  • Revalidation failure. Providers who don't complete the revalidation process by May 31 lose their Medicaid certification, even if they're not under investigation for fraud.

  • One family lost their home care provider overnight in January with no warning. The provider closed after missing two consecutive payments, and the family couldn't find a replacement because of the enrollment freeze.

    Minnesota's home and community-based waiver programs serve tens of thousands of people with disabilities who rely on these services to remain in their homes instead of institutional settings. When providers exit, families face immediate care gaps.

    What to Do Right Now

    If you're receiving Medicaid-funded services in Minnesota, take these steps before your provider exits:

    Document everything. Write down your current provider's name, the specific services your child receives, the frequency of services, and any care plan details. If your provider exits suddenly, this documentation helps you demonstrate what services you need when requesting a replacement.

    Request your provider's contact list. Ask your Medicaid case manager for a list of all currently enrolled providers in your service category in your county. The enrollment freeze blocks new providers, but it doesn't affect currently enrolled ones. If your provider exits, you need to know which other providers are still operating.

    Know your legal rights. Under Medicaid law, you're entitled to continuity of care. If your provider exits, the state must arrange alternative services or provide you with a care transition plan. Contact your county Medicaid office immediately when you learn your provider is exiting, and request a written transition plan within 48 hours.

    Escalate to DHS. If you lose services and your county Medicaid office doesn't provide a replacement within 72 hours, escalate to the Minnesota Department of Human Services at 651-431-2670. Reference the federal Medicaid statute requiring continuity of care (42 CFR § 431.230) and request an emergency placement.

    File a grievance. If services are disrupted and you can't get a replacement, file a formal grievance with your managed care organization or county Medicaid office. This creates a paper trail and may expedite your case.

    Understanding Provider Terminations Versus Payment Freezes

    The 18,000 provider terminations between October 2025 and March 2026 removed providers who hadn't billed Medicaid in the past year. If you were receiving services from one of these providers, they weren't billing Medicaid for your care, which means you likely weren't receiving Medicaid-funded services from them.

    The payment freeze affected active providers who bill regularly. These providers serve families now, and the freeze interrupted their cash flow. This is where the immediate risk exists.

    The revalidation requirement affects 5,583 providers who must submit paperwork and pass unannounced site visits by May 31. If your provider is in this category, ask them directly whether they've completed revalidation. If they haven't, start looking for alternatives now.

    What Parents Are Reporting

    Parents of children with autism who receive EIDBI services report providers reducing client loads, refusing to take new clients, or exiting the Medicaid market entirely. Some providers have switched to private-pay-only models, which excludes families who can't afford out-of-pocket rates.

    Families with children who have cerebral palsy and rely on home care report losing respite care hours, in-home nursing, and personal care attendants. The Minnesota fraud crackdown has left disabled Medicaid recipients without housing in some cases, according to the Minnesota Reformer.

    One parent told the Reformer that their home care provider closed in January after two months of missed payments, leaving them without coverage for their child's daily care needs. The family couldn't find a replacement because the enrollment freeze blocked new providers from entering the system.

    What Happens Next

    Minnesota's Corrective Action Plan runs through May 31. If the state completes the revalidation of 5,583 providers by that deadline, CMS may lift the enrollment freeze and resume normal operations. If Minnesota doesn't meet the deadline, CMS has threatened to withhold up to $2 billion from the state's Medicaid program.

    The enrollment freeze is currently set to last six months, which would extend it through July 2026. DHS hasn't announced whether they'll request an extension or lift the freeze early if revalidation completes ahead of schedule.

    Families who lose services between now and the end of the freeze have limited options. You can't switch to a new provider in frozen categories, but you can request emergency placements with currently enrolled providers who have capacity. Your county Medicaid office is required to help you find alternatives, but in practice, many counties don't have enough providers to absorb displaced families.

    Where to Find Help

    If you've lost services or your provider is exiting, contact these resources:

    • Minnesota Department of Human Services: 651-431-2670 (Program Integrity Division)
    • Minnesota Disability Hub: disabilityhubmn.org (resource navigation and advocacy)
    • The Arc Minnesota: arcminnesota.org (advocacy and provider referrals)
    • Your county Medicaid office: Find your county office at mn.gov/dhs/people-we-serve/people-with-disabilities/health-care

    If you disagree with a denial of services or a care transition plan, you have the right to request a fair hearing. The process is similar to disputing an IEP decision: file a written request within 30 days and present your case to an administrative law judge.

    The Corrective Action Plan aims to eliminate fraud, but it's creating care gaps for families who rely on legitimate providers caught in compliance actions. Document your services, know your rights, and escalate immediately when services are disrupted.

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    Topics Covered in this Article
    AdvocacyAutismDisability RightsMedicaidMedicaid HCBS WaiverHome Care

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